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My sons right kidney is in the wrong place?? Is this safe??
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LatinRain posted:
My son has been having very frequent bathroom trips everytime he puts even the smallest drop of anything in his stomach he has to run to the bath room. He cant even have a glass of apple juice with out having to run to the bathroom right away. Along with having to run to the bathroom he gets really bad stomach pain if he doesnt release his bowel movements right away. I have talked about this to his doctor in the past she she has told me not to worry because it is good to know he has a fast digestive system. But the only problem is that it has gotten worst I cant bring my son anywhere where there isnt a bathroom at least ten feet away because if he doesnt get to it right away he gets allot of pain I just brought him to his doctor again yesterday and expressed my concerns and so she ordered an ultrasound to be done and blood work as well. His doctor told me that my son will have to be fasting before he can have the blood work done so I decided to get it done the following day. When we arrived to the image lab my son asked the tech if this would take long and the tech said no that it would take about 15min at the most. While the tech was performing the procedure she asked me if my son had previously had his right kidney removed I told her no and she asked me if I was sure I gave here a serious face and said yes and she said that she was looking for his right kidney and could not find it!! Finally almost 10 minutes passed and she located the kidney in a wrong place the tech looked very confused and said that she had to step out so that she can ge someone to confirm what she was seeing she then back with the doctor and another tech they did the same and couldnt locate the right kidney and then the doctor said that his right kidney is not where its spose to be. I was so shocked to hear this my heart just sunk! I dont know what to think about this!! I asked if his right kidney is okay the way it was they told me not to worry cause as long as he has 2 kidneys and only needs one kidney to survive. I asked if he is going to be okay and they said that they are not allowed to give me any info and that I would have to wait to speak to his doctor and that the results should arrive in the afternoon. I called my sons doctor in the afternoon and she said that she recieved the ultrasound report but not the bloodwork so I asked her if ultrasound is normal she said that she does not want to talk to me until she receives the lab blood results and that she will get back to me on monday after she gets the bloodwork.
I am so confused and I cant even sleep thinking about this does anyone know anything about this condition??
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mrscora01 responded:
I did some googling and found that what your son has is called an ectopic kidney. Here is the info site from the National Institute of Diabetes and Digestive and Kidney Diseases. Here is the info on Ectopic Kidney

I don't know much about it, but it appears to be an informative site.

Cora
 
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john-skpt responded:
I don't think that you mentioned how old the son is.

Kidneys move around a good bit during fetal, infant, and younger child development. (The body gets taller and they kidneys have to move up quite a bit to reach their final adult positions.) Some times one or both do not move as far or as fast as they should.

So part of the problem could correct itself over time, depending on the age of the child. Or the kidney may not move any more than it already has. This is very individualized and has to be judged on a case by case basis.

I'd suggest that you get in touch with a pediatric urologist (emphasis on "pediatric"). This is not something to be handled by a general practicioner or an adult urologist who may never have seen a similar case before. Depending on the blood work, you might also want to see a nephrologist, although this probably won't be necessary.

There are a lot of variables to these cases (for example is the ureter bent or kinked, is it connected to the bladder in a workable position, is urine building up along the urinary tract somewhere, etc.) so you really do want to see a doctor who has experience with similar cases.

It may not pose any big problems once he gets older, but I really don't like the non-answers and the side-stepping that the radiology tech and your current doc have been giving you. See a specialist.
 
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FSUchamp32 responded:
I can honestly tell you that at 32 years old and living with an Eptopic Kidney you have nothing to worry about. I have lived with no issues. I actually use it to mess with any new doctors I get.


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