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    Creatinine levels of 5.5
    jcnewhouse posted:
    My mom has been sick for 6 weeks. She has been seeing her family doctor, who started tests and waiting around for a week on end to see her to discuss them. She had high numbers on her creatinine, so they schedule her for an ultra sound. They found a nothing on the ultrasound. They took more tests because she is so ill. Her levels are even higher. She is bedridden, sick, tired, legs and ankles so swelled she can't walk, no appetite, not urinating, ect. The doctor said have her stop taking her meds and come see him in three days. Does this sound unusual. My father is taking care of her, and us children do not think she is in good care of this doctor. We are scared of course. She does not look good at all. We are fearing the worse.
    jennsewcute2000 responded:
    A family Doctor can only do some much when it comes to Kidney dieseses.. So, your best bet will be research on a Nephrologist & see what more test they can take for Kidney related issues.
    I have had two Kidney transplants .. so the symtoms are what i experianced before i got diagnosted.Not to worry you or anything.. but you must have her be seen right away.. so you can get the proper answers you seek in her condition.This is a serious issue.. & is often what they call the silent killer.. so get her to a specialist soon.
    john-skpt responded:
    The question of stopping meds depends on what the medications are.

    She probably needs to be referred to a nephrologist, and sooner is better than later.

    Obviously there are a lot of factors to be cconsidered here, like how rapid was the onset? Has the creatinine been creeping higher for years and this is just a sudden spike, or were the more or less normal until a few weeks ago, then rose suddenly? We just don't have enough info here to start guessing.
    jcnewhouse replied to john-skpt's response:
    Thank you for your reply, and so soon. We have been seeing a downside to her personality, mobility and physical condition in the past 4 months. We really noticed 7-8 weeks ago, that she seemed dazed and struggling with her energy level. My dad and us children discussed this issue and he brought her to his fam doctor. They ran blood work to start. Noticed a few things that were spiked, kidney numbers and heart numbers. They then schedule her for the ultrasound, found nothing on the kidneys or heart, but did find a aneurysm. Refered her to a another doctor. Did not do anything more for her. She seen the other doctor 2.5 weeks later and the doctor said she will need surgery at some point, but the aneurysm is not dangerous at this point, but she has other underlying issues to take care of, then he referred her to heart specialist, but not for another 6 weeks. We then asked dad to take her back to his family doc to take another look at her, as she is now bed ridden and in such fragile shape, they ran more tests and asked my father to stop her 8 meds that they prescribe to her, variety of blood pressure, water pills, cholesterol, ect. two of the 8 are potentially dangerous for your kidneys. She did stop, this is the sec day, and no results. I am sure it takes a few to get the drugs (of 10 years) out of your system. She just seams to be in a dangerous zone of illness to be shipped around doc to doc without any care of her symptoms. We may be over-reacting as we are scared too.
    shar12 replied to jennsewcute2000's response:
    I've just found out that I have End Renal Failure and I too, would like to skip dialaysis. Could you please tell me what foods that you found to be helpful. And any other information would be greatly appreciated.
    john-skpt replied to shar12's response:
    There is not a general list of good or bad foods; recommended foods will vary with each patient and will change from time to time. Physicians and renal dieticians make these judgments based on periodic blood tests. (Some patients have very high phosphorus, others don't; some have dangerously high potassium levels, some don't. There just is no general rule about what to eat and what not to eat.)

    You really need to be in touch with a qualified nephrologist on a regular basis.

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    My kidney experience includes many decades pre-dialysis, one year on hemo, an attempt at PD, and then transplant

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