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cystic atrophy of right kidney with simple cysts
An_241330 posted:
My 16 yo daughter just had a cat scan. Her pediatrician of 11 years called me with the report and began the conversation with "how long have you known about the cysts on her kidney?"....I did not know. I am waiting for a call back from the pediatric nephrologists office to make an appointment. But after doing a little research, I see why her pediatrician thought I would know about her condition. But here's the thing, I had plenty of ultrasounds during my pregnancy and NOTHING ever raised any flags.... her rt kidney has shrunk and her left kidney is enlarged. She had the cat scan because she was having pain on her right side. Is it possible that multicystic renal dysplasia could go completely unnoticed until she's 16? And since she is having pain now, what should I be on the look out for until she can see the specialist? Thank you.
John-SKPT responded:
There are a LOT of variations in the presentation of ulticystic dysplastic kidney, medullary cystic renal disease (and/or associated nephronophthisis). It doesn't help that different conditions are known by the initials MCDK and MCKD. Diagnosis of the exact variant in each case can be difficult without a lot of study. The genetics involved vary a lot too, some variants are recessive, others dominant. So it sounds logical that with prenatal and maybe neonatal ultrasounds, but no symptoms to cause ultrasound exams in the intervening years, that the development of the cystic condition could have been missed for quite a few years.

It is probably not crucial to watch the daily urine output volume since that's probably not changing rapidly. Sodium and potassium levels can really only be assessed by blood test.

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