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contrast dye and polycystic kidney disease
Tikasiamese posted:
Please do not have a CT scan with contrast dye if you have polycystic kidney disease. It is harmful and you can land up in the hospital with renal failure and when you do get better - your kidneys won't function the same as when you were before the contrast dye. According to the article "nursing2010:May; page 29 column 3 it states "Avoid intervasuclar ioldinated contrast media whenever possible. If it must be used, the patient should receive treatment to protect the kidneys, such as using N-acetylcysteine prophylactially (off-label use) and adequately hydrating the patient before and after the study".

Thank you, I just found this out this past week because I almost had this done. Please have your urologist and nephrologist schedule all the tests. They are the most informed.
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climerick responded:
I found this too late. The VA did the CT scan two months ago and found multiple cysts in both of my husband's kidneys. He also has hydronephrosis and pain in the right side. So far the VA has done nothing to help him. They are giving him tramadol and tylenol 4 times a day for the pain. We are waiting for help.
john-skpt responded:
Iodine contrast is always nephrotoxic, it just depends on how much is used, what form it is in, and what the state of the kidneys is before it is used. In some cases it is judged to be an 'acceptable risk'.

There are options but you or your physicians need to be aware of them. A CO2 angiogram can visualize a lot almost as well as a CT with iodine contrast. It will not perform in every case but it is sometimes all that is required. It's just non-standard, so you need to ask about it.

Everyone needs to be proactive with health care, and if something just does not sound right, ask a lot of questions or get a second opinion first.
99tr20 responded:
have had pkd all my life.. i remember getting ct scans w/dye ..all my life. my dr told me i should have been in my 60's before having to start treatment.
i have wondered many times since i started hearing about this dye stuff.....wonder if it caused my kidneys to fail so early in life???
pamie1 replied to 99tr20's response:

My husband has PKD and his creatintine is at 5.67 now.
His doctor wants him to start dialysis. I feel he should go
for the transplant. But we have our own business and he
is/runs the company. How are you doing now and how long
did your recovery take. I know each case is different, but just wondering?

Thank you
dougdog replied to 99tr20's response:
I too have had stones (cystine) all my life. Passed my first "cluster" at age 7. I remember having X-rays with contrast (possibly barium?) as a child and teen. Am now Stage 3 and have a GFR of 47. I've seen a lot of changes in imaging technology, it seems ironic that I'm back to a regular x-ray. Just used in conjunction with fancy sortware.

Spotlight: Member Stories

My kidney experience includes many decades pre-dialysis, one year on hemo, an attempt at PD, and then transplant

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