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    Re: Information you should be aware of
    An_206527 posted:
    I had both knees totally replaced in December 2010. I already have so many other orthopedic problems like CRPS, a 4 level fusion with 4 rods and bridges, development of a spine disease called Arachnoiditis after the spine fusions or possibly scar tissue or the 6 epidural injections I had. Plus, I have a permanent shoulder separation at the AC joint for some unknown reason, 3 herniated disks still remaining in my neck with two of them crushed with existing osteophytes impinging nerves cauisng parathesia in my arms and hands, a totally fused wrist, neuropathy in both feet from the CRPS and severe osteoarthritis. I had a very limited range of motion of the left knee prior to and after the surgery. No imrovement at all after 8 weeks of PT but the right knee did fine and got to 120 degrees. It hurts only because it has to compensate for my left knee now. Here is the problem. After having 2 forced manipulations for scar tissue, my left knee only got worse and the pain continued to increase daily. The second manipulation was the worst. The left knee became very swollen by the second week and my ROM actually decreased. Then a large lump formed just above the knee cap on the vastus medialis muscle that is the inside quadricep that joins at the knee. I went back to see the assistant surgeon since mt Doc was out of the office. I had to actually ask to be x-rayed and in fact, never even had x-rays before I had my manipulations. It was suspected the bone tissue was growing within the soft tissues surrounding the knee. The bone grows embedded througout the tissues and is called Heterotopic Ossification. I was referred for a bone scan that confirmed the disease. It will continue to grow and the unbearable pain willl not subside for 12-18 months and possibly up to 24 months. Nothing can be done to treat it, stop it or perform surgery since the bone will just grow back. I performed a lot of internet research on reliable medical sites and learned that this disease is preventable. High risk patients are those with limited ROM before and after surgery, require manipulation, have any spinal or neurological injuries or diseases, have CRPS and diverse osteoarthritis. That was me. I should have received medication and radiology treatments before and after the TKR and the same before and after the manipulations. Manipulations can also contribute to the development of the disease. Now I will be crippled for the rest of my life in the left leg. I was never informed about this possibility at all. The Doc only said he never considered me high risk or thought I would get it since he never had it happen before and has performed hundreds of TKR's. The bone growth matures at an average of 12-18 months an surgical intervention is not a safe option since it can cause severely dangerous bleeding since they have to cut into and around the muscle and soft tissues and the bone will most likely regrow again anyway based on the statistics so the risks outweigh the potential benefit which is unlikely anyway. I am totally disgusted since I cannot handle much weight bearing, walk very far even with a walker and have constant severe pain that may last a lifetime. I think I should have at least been informed and made the choice for the preventive treatment. Now I have no choices left. I am just crippled and with a lot of pain that may never subside. The lump was evidence of the bone growth within or underneath that muscle. Had the disease been dicovered in its early stages ie. with x-rays, medicines could have disolved the bone but it is now too late. I think it could have been found many weeks earlier with an x-ray if I had any before the first or second manipulation and could have been treated. I suggest you ask if you are high risk for the development of this disease and find out if you can have preventive treatment ahead of time so you do not end up like me. I wish I had known. My lfe will now never be the same.
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