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Red "hot hands"
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kenronkea posted:
I am very new to lupus, being diagnosed 12/09. I suffer from the ongoing headaches, the butterfly rash on my face, fatique etc., but one symptom I don't hear much about is one that I have and that is red hot hands. My palms will spontanously turn red and hot to the touch. I thought I was crazy until it happened once in my nerologists office and she wittnessed it. Am I crazy or is this a normal symptom.
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squirmy1963 responded:
I don't know that symptom, but it could be related to Lupus, because red and hot would mean inflammation and hand inflammation is very common. I really just wanted to welcome you to this community. Eventually, your medicines will help with your rashes and fatigue, Plaquenil is good for that. Headaches are common, migraines too, Ultram is good for that and a lot of arthritis type pain. If, after a few months, you are not better, stronger meds are available. Not to be a downer, but it took almost 5 years of medication trial and error to get my Lupus to quiet down. I am sure you will hear from other members that are more knowledgeable about your symptom. Take care.
 
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kenronkea responded:
Thank you so much for your reply Squirmy1963. You are my first and only reply so I was starting to think that I was really in a class all by myself. Your welcome was soothing as well, as I am having a VERY HARD time adjusting to this "thing". I have recently begin to battle a series of derpression stages that I have never in my life encountered. I just want to talk to other Lupies to feel some sense of normalcy. My family have been phenomenal, however it is so hard for them to find the right words sometimes being that they are not a victim. If any others read this, I welcome all conversations...I guess I'm asking for conversations.
 
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renalupie1 replied to kenronkea's response:
My hands will turn red but usually after having a spell with Raynaulds when they can be ice cold for a time. Once the warmth comes back, my hands will be red.

Coping and learning how this disease affects you takes time. This illness can lead to the "blues" as I like to call them. It is hard to get use to not doing what you used to do, and accepting limitations.

There is no "normal" with this. Just when I think I figure out how to work with the disease, it finds a new way to put me down. LOL.

Hang in there, don't give up on yourself.

Rena
 
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An_206339 replied to renalupie1's response:
Hi I am new to this. I was diagnosised with lupus about 6months ago. My primary doctor told me about 4 years ago he thought I had lupus but it would take time for them to actually be able to diagnosis me.

I have the very cold hands, sores on my tongue and in my hair line, and terrible pain in the joint of my hands and feet. I am tired all them time and I have really been getting depressed alot lately. It seems like each day there is something new that I have to overcome to get through the day. But hot showers help me the most. There are days that I take at least two of them.

I am suppose to loss some weight. Can anyone tell me a good way to do this or is there a special diet that anyone has been on that can work with all the meds.
 
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kenronkea replied to An_206339's response:
Anon_30360, I am just curious - did your lupus show up in your blood like an ana test? I ask because of the length of time that you described that it had taken for your diagnosis and I was told in 2006 that I too "might" have it because of the butterfly rashes on my face but the biopsy showed negative and so did the blood test. In August I began to battle with fierce headaches, achy joints, fatique, hot hands, depression etc., yet my all of my blood test still show negative or normal. My doctors have diagnosed me as sero-negative lupus. I am so confused by it all!!!
 
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grandma2010 replied to kenronkea's response:
kenronkea
i too have off and on butterfly rash on face which is hot to touch, achy joints, awakened nightly by joint pain, very tired and severely depressed, had the ANA test results said my labs were within normal range im not sure what that means but i hope my doctor does not stop there i would like to know whats wrong
 
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jessi19661 replied to grandma2010's response:
Hi Grandma2010, I am a grandma too, garndma jessi, I am called!!

I am very sorry to hear what you and all the above posters are dealing with, having "normal labs". , I, too, have "normal labs" !!! I did have a positive ANA at one time, but it is also usually negative. But your symptoms and signs you have stated here are VERY like mine. My rheum is treating me for lupus even though I have the bizarre test results, like you. Is your doctor treating you for lupus? Are you on plaquenil? Prednisone? Just curious. They help me, but I am still very sick. I am still strong when I have to be, but after I am very weak and sick, plus the arthritis.......
Hoping you hang around, welcome, I hope you feel better! jessi
 
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squirmy1963 replied to An_206339's response:
High fiber, Low fat, no acidy foods, and exercise when you are well, even if it is only a short walk. No carbonated sodas.. I have been told all these things, and do my best, but continue to gain weight. I was always "too thin" before this disease. My doctors wouldn't have recognized me 10 years ago. But there is no special diet, except to eat healthy meals, grains and veggies and low acid dark fruit. Keep posting. This board is not as active as it once was, but I;ve been here for years, have learned a lot and hope some of the oldies and really knowledgeable ones come back to webmd. Yogurt with berries and granola is a great treat and also crab, tomatoe, gr. pepper with a little low fat mayo, all diced small and kept in fridge overnight, are two of my favorite meals. Eat more often, but smaller portions. Have healthy easy foods available at all times so you don't get overly hungry and lose control and overeat the wrong foods. Look forward to getting to know you.
 
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squirmy1963 replied to kenronkea's response:
Hang in there kenronkea, this is the most typical story of all Lupies. I know you want answers, have you tried other Rheumatologists. Find someone, who is thorough and dedicated to your case, I have much better luck with women doctors....no offense Doc Z, but in general they are less arrogant, admit if they simply don't know, more likely to refer you to other specialists. Keep trying until you have the answers that will bring a diagnosis and treatment. All the best to you.
 
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lisaisweavebee replied to squirmy1963's response:
Has anyone noticed that this thread is 8 months old?? So I doubt that Kenronkea is going to see the replys...sigh, when will WebMd table these old discussions?!

Lisa
 
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theeternalsoul responded:
IF YOU WILL READ UP ON CHAKRAS, YOU HAVE CHAKRA CENTERS ALL THRU YOUR BODY. THE HEALING ENERGY FROM GOD COMES THRU YOUR CROWN CHAKRA WHICH IS IN THE TOP OF YOU HEAD THE HEALING ENERGY COMES DOWN AND OUR YOUR HANDS (PALMS & FINGERS) THAT IS HOW THEY DO THE HANDS ON HEALING OF REIKI. CALL IT A BLESSING. IF YOU TAKE YOUR HANDS & PLACE THEM AROUND THE AREA WHERE YOU HURT AND CLOSE YOUR EYES & GO WITHIN YOU WILL FEEL THE LOVE & ENERGY FROM GOD COME THRU YOUR BODY AND THE AREA WHERE YOU HAVE YOUR HANDS AROUND WILL FEEL THE WARMTH & HEALING GO INTO THE AREA & IT WILL FEEL BETTER. YOU CAN DO THIS FOR OTHERS ALSO. READ UP ON CHAKRA'S & REIKI. YOU HAVE A GIFT FROM GOD. BE GLAD & USE IT TO HELP YOURSELF & OTHERS.
HAVE A BLESSED DAY,
MARY
 
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theeternalsoul responded:
THIS IS CALLED "REIKI", HANDS ON HEALING, YOU HAVE "CHAKRA" CENTERS ALL THRU YOUR BODY, THE CROWN CHAKRA IS ON THE TOP OF YOUR HEAD, THE HEALING ENERGY FROM GOD COMES DOWN THRU YOUR CROWN CHAKRA & INTO YOUR CHAKRA IN THE PALM OF YOUR HANDS, YOU ALSO HAVE CHAKRA'S IN THE TIPS OF YOUR FINGERS, THIS HEALING ENERGY CAUSES YOUR PALMS & SOMETIMES FINGERS .TO GET WARM OR HOT. THAT IS BECAUSE THE HEALING ENERGY FROM GOD IS COMMING THRU THEM. IF YOU PLACE YOUR HANDS AROUND AN AREA OF YOUR BODY OR SOMEONE ELSES BODY THAT IS EXPERIENCING PAIN, THEN CLOSE YOUR EYES. & FEEL THE HEALING ENERGY, LEAVE YOUR HANDS THERE UNTIL YOU FEEL BETTER. IF YOU LOOL UP REIKI & CHAKRA IT WILL EXPLAIN IT IN MORE DETAIL.
YOU HAVE A GIFT, ENJOY IT & USE IT TO HELP YOURSELF & OTHERS.

SENT WITH SPIRITUAL LOVE & LIGHT
MARY
 
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jessi19661 replied to lisaisweavebee's response:
I know it is old, but i think people search under certain terms and it pulls up old discussions, from the archive, which is useful for information for people who cannot find discussions concerning their question. Maybe this is useful.

This "hot red hands" is most likely raynaud's phenomenon, which goes along with many autoimmune diseases. Google it friends!!

A TIP***for raynauds cold, white, hands...rinse in TEPID water, NOT WARM, or hot, or cold. This will help return blood and feeling. But they will probably still go thru the blue and red phases, anyway.
 
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jessi19661 replied to theeternalsoul's response:
I wish to God that I could hold a painful area with my hands and concentrate and make the pain go away!!!!!!!!

Sadly, this does not work for real severe pain.......


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