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polymyalgia rheumatica and temporal arteritis?
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calicogirl63 posted:
Hi, All!!

I didn't know exactly where to post, so maybe you nice lupus people will help me out. I have been diagnosed with polymyalgia rheumatica and very likely temporal arterits. I am having a biopsy on the artery in a day or so, and I was hoping to pick y'all's brains a bit (pun intended) for a bit of info. Does anyone here have this condition? Where else shoul I post? Thanks for helping me out!

calicogirl63
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squirmy1963 responded:
I just wanted to say hi and welcome. I personally do not have your diseases...but others on this board may know about or have it. Hope all goes well with your biopsy. Keep us posted.
 
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HG1948 responded:
Calicogirl63,

Hello. My daughter, who is now an adult, was diagnosed with polymyalgia rheumatica as a teenager. She'd been complaining of joint pain, particularly painful knee joints since she was 8 years old.

We used to think that her problems occured because she was born with her knees misaligned. Back 30 years ago, had to be straightened by wearing double upright metal braces during the day, between the ages of 12 mos. to 24 mos. old.

Because of knee pain, and shoulder pain, she contacted a orthopedic surgeon a few years ago. He ordered lab. testing and imaging studies. There was no evidence of autoimmune disorders or osteoarthritis at that time. She remains in pain, and uses a knee brace, particularly during cold weather.

I want her to see my rheumatologist, because of her high deductable, she hasn't.

Good luck to you. Let us know how things are going with you.

HG
 
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Lihopomaikaii responded:
Hi and welcome...i am new to this forum as well but everyone here has been so helpful and given me hope again. I have SLE and an overlapping disease of fibromyalgia. My lupus doctor (a rhematologist) treats my fibro. Maybe you can see one too. I have a neurologists who monitors my migrains and i see him tomorrow. i was going to ask him if the nerve endings have anything to do with the pain that i get ( like in the brain). I am new to this fibro thing and dont know much about it. i am still trying to learn about all my illnesses.

I dont know much about this but maybe my suggestion could help you. good luck and take care
m


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