Skip to content


    Exciting News for WebMD Members!

    We've been busy behind the scenes building new message boards for you. You'll have new and easier ways to find messages, connect with others, and share your stories.

    And, this will all be available on your smartphone or other mobile device!

    What Do You Need to Do?

    The message board you're used to will be closing in the coming weeks. While many of your boards will be making the move to our new home, your posts will not. Want to keep a discussion going? Save posts you want to continue (this includes your member profile story), so that you can re-post them in the new message boards.

    Keep an eye here and on your email inbox, we'll be back in touch soon to give you all the information you need!

    Yours in health,
    WebMD Message Boards Management

    I have lupus and epstein barr virus
    gringa1 posted:
    As I stated I have lupus and Epsein barr virus, my question is should I be concerned with epstein barr virus, I had asked my doctor (rehumatoloigist) and she said not to worry. The info that I read talks about mono,can one have epstein barr without having mono??. Does anyone have better info for me.
    lisaisweavebee responded:

    Even though I don't have a answer for you (sorry!), I wanted to say "Welcome". Hopefully, Dr. Z or maybe another lupie will have some information about the Epstein Barr virus. Usually someone around here will have a answer so please be patient.

    Sorry I couldn't be of more help!!

    allie_bf responded:
    It's possible, quite likely even, that you've had mono, but just didn't realize it. With lupus, you get used to feeling "wiped out," and uncomplicated mono is pretty much just like a cold/flu with an exaggerated feeling of fatigue. Mono also carries a risk of having an enlarged spleen, with the associated risk of splenic rupture, but unless you knew to look for it, you'd never know that you had that problem. Although there are a lot of different theories linking EBV to other conditions (e.g. chronic fatigue syndrome,) the research supporting those isn't conclusive. Your major focus should be on managing your lupus well, not so much on worrying about EBV.
    gringa1 replied to allie_bf's response:
    I donate blood, now I'm thinking I shouldn't, a friend ask if I was contagious, told her no, thats what my M.D. said.... is that correct. So, from reading your post you said "had mono", so should I get rechecked for that??
    So confused with all this crap :(
    Your reply was informative, thank you.
    gringa1 replied to lisaisweavebee's response:
    haha, thank you.
    Lupylisa44 replied to gringa1's response:
    I don't think you should donate blood if you have EBV.

    With love, with patience and with faith, we'll make our way.
    allie_bf replied to gringa1's response:
    You can ask the medical staff at your blood banking site, but I don't think that EBV is an automatic exclusion (if it were, there would be much less supply since so many people have had mono in the past.) Unless you are currently having mono symptoms it's probably not worth going back to get the mono spot test. Your active case may have been as far back as your teenage years. Certainly beyond a few months, some sources quote a year, it's unlikely that you could spread mono to someone else.

    With Lupus

    WebMD's Day2Night will help you develop personal coping strategies for living with lupus – at home,
    at work, or with family
    and friends.
    Visit Lupus Day2Night

    Helpful Tips

    Minimizing steroid side effectsExpert
    It is likely that most lupus patients will at some time be taking steroids to control some aspect of their disease. In order to minimize ... More
    Was this Helpful?
    79 of 110 found this helpful

    Related Drug Reviews

    • Drug Name User Reviews

    Report Problems With Your Medications to the FDA

    FDAYou are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.