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Lupus & Shingles
Fesser98Sp posted:
Hey all, sorry I haven't written lately. Hope everyone has been trying to stay healthy. I have been going through doctors, again. I'm still trying to get diagnosed. I have a new one now and once the weather gets nice and I go sit in the sun a while they're gonna do a biopsy. Hopefully they'll find something.

Anyways, I have come down with shingles for a second time. The last time I had it was 4yrs ago. I am just curious as to the rest of your experiences as to whether or not shingles tends to be more prevalent in conjunction with lupus.
Lupylisa44 responded:
Hi Fesser98sp

I do believe that shingles are more prevalent in lupus patients because we are immunocompormised. Are you taking any lupus meds that supress your immune system? That is also a contributor to being more prone to shingle.

I have had them 22 times in as many years. My doctor advised taking acyclovir daily to keep them away, but the last thing I want to do is add another drug to my daily meds! I already take 15 pills a day.

Shingle are tied directly to stress with my. My stress level is much lower than it used to be It has been about 5 years since I last had an outbreak of shingles. Coincidently,it has been about 5 years since I got divorced! LOL! There is much less stress in my life than there used to be!

A couple of things that I noticed can trigger shingles are stress and foods that are hign in L-Arginine (especially nuts.)

A good thing to use to prevent shingles is the supplement of an enzyme called L-lysine

I hope this helps!

With love, with patience and with faith, we'll make our way.
Fesser98Sp replied to Lupylisa44's response:
Thanks Lisa!! I am still going without a diagnosis but I keep trying to give the docs enough bread crumbs to figure it out. So it helps alot to be able to ask other people who have been dealing with this for a lot longer than I have. They have done a ton of lab work that all comes back negative. My newest pcp's theory is that I may have lupus but I may just not be far enough along yet to have positive lab results. I hope all has been well with you, TAKE CARE!! :)
msbrich50 replied to Fesser98Sp's response:
Wow, I had shingles back in 2007 and thought it very strange since I had chicken pox when I was a child. Unfortunately I couldn't get to see my primary that day and ended up at an emergent care clinic, since then no one has connected me having shingles with the lupus. Thank you so much this answers questions I have had but was getting no answers to. This was in another state so I will be sure and talk with my Rheumy next month about this and see if he can get my records from that clinic, I still have severe pain in my elbows ever since I had shingles. Is that normal???
Lupylisa44 replied to msbrich50's response:
To get shingles you have to have chicken pox first. The chicken pox virus (varicella zoster) remains in your system, usally in a dormant state. Instead of returning as chicken pox, it shows up as Shingles.

Your shingles could have been unrelated to your lupus. Stress is a big factor in shingles. I know several people who don't have lupus who have gotten shingles when under duress.

The pain that you have inyour elbows is called post-herpetic neuralgia. It is not uncommon for the pain to remain long after the rash has dissipated. I would suggest talking to your doctor about it because there are tratments available for postherpetic neuralgia. I have used a lidocaine dermal patch in the past as well as some ovcer the counter cream called Zostrix.

Here is a few links that may help you better understand it:

With love, with patience and with faith, we'll make our way.

With Lupus

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