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April Poll: What Do You Wish They'd Invent?
Andie_WebMD_Staff posted:
What discovery for treating or diagnosing lupus do you wish they would come out with in 2011?

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What discovery for treating lupus do you wish they would come out with in 2011?
  • Anything to relieve this constant pain!
  • Something to clear my Lupie fog so I can think again!
  • One test to quickly & accurately diagnose without runaround.
  • Other...Share your biggest Lupus invention wish!
View Poll Results
lisaisweavebee responded:
Of course, obviously, I wish they would invent a cure! That said, I would like them to finally come up with one stinkin' test that is reliable to dx lupus. The runaround between doctors - one rheumy saying you have it and another rheumy saying you don't - not knowing how to plan your life, what you can and can't do, what drugs to take, how often to have tests....all could be eliminated with one uniform test.

I know...I'm dreaming big!

David Zelman, MD responded:
Something as effective as steroids without all the side effects. BTW that is not the new drug Benlysta despite all the recent fuss
David Zelman MD
Lupylisa44 responded:
It seems like doctors have become so (over) specialized these days! Why, if there are so many auto-immune diseases, isn't there an auto-immunology specialist?

With love, with patience and with faith, we'll make our way.
anowlin responded:
If I had my wish, it is the side effects of lupus that for which treatment/cure could be found. I have pulmonary hypertension as a result of lupus-so breathing is gasping for air at times.

Someone else may have lupus nephritis and need to be on dialysis and is awaiting a kidney transplant, Then after the transplant, that person will need to be on anti-rejection medication his/her whole life.

Or there's the person w/ tons of side effects to steroids used to treat lupus. Or there is the person with blood disorders as a result of lupus. All of those are chronic illnesses for which treatment is little understood by most docs.

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