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gringa1 posted:
So tomorrow I have appt. with my rhuemy, my husband said for me to be tested again, he insist I don't have lupus, it's BS. I've had so many blood work and always shows positive for lupus. Why does he have a hard time believing this.
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lisaisweavebee responded:
Hi,

Good luck today at the rheumy appt.

I think men, in general, are wired to "fix problems" and lupus is something he can't fix. Plus, I am sure he is worried about what is happening to you and how it will effect your life together. Sometimes, I think it's harder for the family to accept more than it is for the person with the disease. You might try bringing him to your rheumy appt some time and let the doctor answer his questions.

Let us know how it went at your appt.!

Lisa
 
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gringa1 replied to lisaisweavebee's response:
Thank you Lisa, I think you're right. I always go to him to help fix my problems, and this one is changing our life style.
We do alot camping in the desert, and now he makes sure I'm covered up,lol.
When we go to baseball games he makes sure I'm not in the sun. Lupus has really slowed me down, can't do has much as I used to and that really bums me down :(
Thanks again........... Bertie
 
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lisaisweavebee replied to gringa1's response:
yep, Bertie, lupus sucks. I love the beach and the ocean so much, but have not been back since 2006. I keep thinking I'll try going each year but my husband thinks it's just a bad idea all the way around.

My youngest son played football in college and the season would start in the heat of August and I always looked ridiculous with long sleeves and a big hat on sitting in the bleachers when everyone else was in tank tops and shorts.

It is what it is though - nothing we can do about it.

Lisa


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