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So done with this
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ronnibear posted:
Labs are coming back normal so far. ANA negative, RA factors negative. So I guess it must all be in my head the reason I can barely move. No one believes me, I think even my husband and kids are starting to question whether or not my 'ailments' are real.

Ronni
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renalupie1 responded:
You know, it took years before my ANA and RA came back positive. YEARS and I even had a classic RA flareup swollen red joints, couldn't walk, the works and it was negative. The docs need to treat the symptoms. Labs are not biblical definition of illness.

Hang in there. If it is "just fibro" then no labs will show it either.

rena
 
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whatshequilted responded:
My doc is going back and forth between lupus and RA. The reynads phenomenon and lupus anticoagulant are throwing me to this side

Anyway. My RA tests and ANA tests have ALL come back negative. I have symptoms of both but the labs are not confirming. So my doctor has tossed around sero negative RA. That is when your labs come back normal. So it's very possible that your labs never confirm your desease

Lupus and RA both have "markers". Blood work is only one of them. Don't give-up. I know exactly how you feel. My email is Jess_Terry@msn.com is you want to discuss it more
 
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leecat41 responded:
I've been dealing with this since 2004. I've never had a positive ANA.
To do what is right is not always easy, to do what is easy is not always right.
 
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lupylisa44 responded:
Hi Ronni

Welcome!

It would be great if you could give us some more information about what is going on with you. There are 11 criteria used to diagnose lupus which are listed under the Resources section of this board along with a whole bunch o other great information.

Who is running the tests? Are you seeing a primary care doctor or a rheumatologist? What symptoms are you having? How long have you been experiencing symptoms. Did they check your vitamin D levels?

Since all of your tests are coming back negative, it is possible that you have fibromyalgia which acts a lot like lupus. Some people have primary lupus and secondary fibromyalgia. But you can also have primary fibromyalgia. There is also a fibromyalgia support group on WebMD you may want to go there and see what other information you can find about it there.

Lupylisa
With love, with patience and with faith, we'll make our way.


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