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Have Sjogrens syndrome but out of control symptoms/fevers...lab question.
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shell04937 posted:
So I was diagnosed with Sjogrens 6yrs ago. After starting Plaquinel I did great for 5 yrs. Over the past year we added Prednison and I lived on daily Ibuprofen for Joint pain, fevers and headachs just like prior to my diagnosis. So I went back to Brighams hosp in Boston since my local Rheumy yet again is stumped.
Boston Rheumy did all my labs and my Sjogrens lab test both came back positive. My RF was positive last time and this time normal, all my labs for inflamation were normal and my ANA was positive.
Dr said she has seen cases of patients on Prednison and taking otc anti inflamitory meds can have normal labs while on meds. She has stoped the Prednison and does not want me taking any OTC meds so she can see the real picture.
Something I didnt mention to her that I didnt think about until it happened again is that every few weeks I feel like I am having an allergic reaction to my own body. Every inch of me itches and nothing stops it. I will mention that to her when I see her again.
My question for all of you is have you heard of someones labs coming back normal even with out of control symptoms just because of the meds they are taking?
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lmgilmore responded:
I was diagnosed about two years ago now and at my last appointment my test came back normal as well. My rheumy said that this ment that the meds were actually doing their job. Currently however I am only taking hydroxycholorquine and diclofenac. I was still experiencing most of my symptoms still so I don't know that I agree that the meds were doing their job. Hope this helps a little.
 
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Margareth8537 responded:
I have my bloods checked every month, as sometimes there is a positive reading and sometimes a negative. I understood from my consultant that that was fairly common, and is why diagnosis can take a while.
It is irritating how meds seem to work quite well for some time and then suddenly everything seems to get much worse very suddenly. Always seems to happen to me just after I.ve seen my doctor for a 6 month check!

Margaret


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