Skip to content

    Announcements

    Exciting News for WebMD Members!

    We've been busy behind the scenes building new message boards for you. You'll have new and easier ways to find messages, connect with others, and share your stories.

    And, this will all be available on your smartphone or other mobile device!

    What Do You Need to Do?

    The message board you're used to will be closing in the coming weeks. While many of your boards will be making the move to our new home, your posts will not. Want to keep a discussion going? Save posts you want to continue (this includes your member profile story), so that you can re-post them in the new message boards.

    Keep an eye here and on your email inbox, we'll be back in touch soon to give you all the information you need!


    Yours in health,
    WebMD Message Boards Management

    Have Sjogrens syndrome but out of control symptoms/fevers...lab question.
    avatar
    shell04937 posted:
    So I was diagnosed with Sjogrens 6yrs ago. After starting Plaquinel I did great for 5 yrs. Over the past year we added Prednison and I lived on daily Ibuprofen for Joint pain, fevers and headachs just like prior to my diagnosis. So I went back to Brighams hosp in Boston since my local Rheumy yet again is stumped.
    Boston Rheumy did all my labs and my Sjogrens lab test both came back positive. My RF was positive last time and this time normal, all my labs for inflamation were normal and my ANA was positive.
    Dr said she has seen cases of patients on Prednison and taking otc anti inflamitory meds can have normal labs while on meds. She has stoped the Prednison and does not want me taking any OTC meds so she can see the real picture.
    Something I didnt mention to her that I didnt think about until it happened again is that every few weeks I feel like I am having an allergic reaction to my own body. Every inch of me itches and nothing stops it. I will mention that to her when I see her again.
    My question for all of you is have you heard of someones labs coming back normal even with out of control symptoms just because of the meds they are taking?
    Reply
     
    avatar
    lmgilmore responded:
    I was diagnosed about two years ago now and at my last appointment my test came back normal as well. My rheumy said that this ment that the meds were actually doing their job. Currently however I am only taking hydroxycholorquine and diclofenac. I was still experiencing most of my symptoms still so I don't know that I agree that the meds were doing their job. Hope this helps a little.
     
    avatar
    Margareth8537 responded:
    I have my bloods checked every month, as sometimes there is a positive reading and sometimes a negative. I understood from my consultant that that was fairly common, and is why diagnosis can take a while.
    It is irritating how meds seem to work quite well for some time and then suddenly everything seems to get much worse very suddenly. Always seems to happen to me just after I.ve seen my doctor for a 6 month check!

    Margaret


    Coping
    With Lupus

    WebMD's Day2Night will help you develop personal coping strategies for living with lupus – at home,
    at work, or with family
    and friends.
    Visit Lupus Day2Night

    Helpful Tips

    Vitamin DExpert
    Lupus patients are rightfully told to avoid the sun since it can flare the disease. But guess what... by doing so you are setting yourself ... More
    Was this Helpful?
    94 of 124 found this helpful

    Related Drug Reviews

    • Drug Name User Reviews

    Report Problems With Your Medications to the FDA

    FDAYou are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.