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samf09 posted:
About 2 years ago I was diagnosed with an undifferentiated connective tissue disorder which my rheumatologist thinks is lupus... my only sypmtoms were puffy hands, fatigue, and a +ANA. I also tested positive for lupus anticoagulants but have never had a blood clot. I see my rheumatologist every 3-4 months and for the most part always feel the same. In the last month or so I have started to feel like CRAP. Very tied, naseaus, body aches (but not really joint aches). Since Im not really sure what all lupus entails... do you think that this is related to the lupus or is this a different problem all together?
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Lupylisa44 responded:
Hi Samf09!

Welcome to the lupus exchange!

All of the symptoms you describe could be caused by lupus. But since you describe more body pain than joint pain, it could also be fibromyalgia, which is very common in lupus patients.


Here are some sites where you can find more information about fibromyalgia

http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001463/


http://www.medicinenet.com/fibromyalgia/article.htm


There is also a fibromyalgia exchange here on WebMD



http://exchanges.webmd.com/fibromyalgia-exchange

My first suggestion for you is to educate yourself more about lupus. Education is very important so you can better understand what is happening to you.

There is a lot of great information on this board in the Tips and Resource section, located on the right hand side of the homepage. There are also some great websites where you can learn more about it. My favorites are:


www.lupus.org

http://www.uklupus.co.uk/

http://www.lupusalliance.org/

http://www.aarda.org/

http://www.medicinenet.com/systemic_lupus/article.htm


http://www.nlm.nih.gov/medlineplus/tutorials/lupus/htm/_no_50_no_0.htm


There are also a couple of books that I would strongly recommend that are great reasources for a lupus patient.

Thefist one is The Lupus Book by Daniel Wallace. It is considered, by most, to be the most comprehensive and educational book for lupus patients.


There is another book that I really like called Lupus Q&A: Everything you need to know By Dr. Robert Phillips and Dr. Robert Lahita. This book is very easy to read and understand. I give it it to my friends and family so they can undertand more about lupus.


I hope this helps!

Lupylisa
With love, with patience and with faith, we'll make our way.


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