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    Octoberschild posted:
    I recently visited with my Rheumy because of all the joint pain I am having now. She wasn't happy over my taking Naproxin after she had told me not to take any Nsaid's because my protein level was too high and it was affecting my kidneys. I did stop taking it for some time, but found the pain too much to take. Specially when it's keeping me awake. I started taking just one pill a day at bedtime to help me sleep better. It worked! My Rheumy checked my protein level again, she said "There is no way I'd allow you to take Nsaid's, your protein level is far too high!" I'm allergic to just about every narcotic medication there is. So what does one do to control pain and swelling if you can't take Nsaid's and pain medication?

    I haven't been on here much lately due to my dad falling ill with pneumonia, congestive heart failure, and kidney's not functioning well. His doctor told me he needed to go into the hospital because he wasn't going to get well at home. My mom and I drove him there and had him admitted. He began improving after about a week there, then all of a sudden while just sitting in his room and visiting with him he began talking with slurred speech. I quickly ran for his nurse. She then did an assessment of dad, and thought it just some cough medication she had given him. However, she did have the good sense to call in a doctor. Dad was then thought to have had a stroke. The doctor ordered a CT scan and and MRI on dad. Then moved him to critical care. He was paralyzed on his whole left side! His throat muscles too were paralyzed. From Critical Care the moved him over to ICU.While in ICU though they had put a feeding tube down into dad. He was against it in the beginning, but I told him it would only be a temporary thing until his throat muscles were better. The following dad they thought he was doing better so back to Critical Care he went. He began eating pudding and sherbert, seemed to handle that fairly well. The next day I arrived to find out that dad had taken a turn for the worse. All he kept telling me and my mom is that he wanted to come home. I told him I would take him home and that I did! He passed away here at home surrounded by many of his loved ones, on Dec. 18th.

    With all the stress I've had as of late, my Lupus is flared up quite a bit. My rash has spread down onto my neck and into my ear now. On top of that, I'm in a state of depression and I hurt like the dickens with nothing to help the pain. Tylenol doesn't do a thing for me. My Rheumy wants me to see a doctor that specializes in pain management. Can't recall the exact name of this specialist. Just what I didn't want was another doctor to treat me for my Lupus.

    Anyone have any suggestions on what works well for you for your pain management? Does anyone else have allergic issues with pain killers?

    I'd like to wish everyone a Happy New Year and may it be one that fills our Lupus world with new approved treatments for all of us Lupies!!!
    Of one thing I am certain, the body is not the measure of healing - peace is the measure. by George Melton
    MaryConcordNC responded:
    I can appreciate what you're going through. My Mom and Dad both passed away this past fall within six weeks of each other. My Dad died very unexpectedly on the day after Thanksgiving, which was the day we were supposed to bring him home with us to stay until after Christmas. The stress is hard on us.
    My Mom had terrible Scleroderma with Crest Syndrome (another auto-immune) with lots of allergies, and liver and other organ failures which made pain medication challenging, but the pain specialist was able to help, so I would highly recommend following your doctor's suggestion.
    Also, if you haven't tried it, you might look into change of diet. Changing to gluten-free has helped me, and many others report that significantly reducing sugar also helps. I know this can add more stress, so you might research and try the diet changes if/when you have a little more time and after the pain specialist. The most important thing for me is keeping a diary to record everything and talking it over with my doctors (both rheumatologist and family physician).
    Octoberschild replied to MaryConcordNC's response:
    Thank you Mary! I do have plans of following up with the pain management specialist. Waiting to get in to see my primary to be referred to one. Not sure why my rheumy didn't just refer me since she is the one recommending it for me.

    I have read about others that are trying the gluten-free diet. Have seen where it has helped others, while some didn't find any relief by going on a gluten-free diet. At this point I'd say just about anything is worth a try to be free of the pain.

    I am so very sorry for your loss Mary. It's hard enough to lose one parent, but two within such a short period of time would be almost unbearable to take! For me, Christmas just didn't feel like Christmas this year.

    Hoping the New Year brings us all better health and great happiness. Take care!
    Of one thing I am certain, the body is not the measure of healing - peace is the measure. by George Melton

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