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Is Tanorexia Real?

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Lupus Health Center
Community TV: Speaking of Lupus with Christine Miserandino
Last Reply:
Little over 12 hrs for doc visit
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BelieveNheaven posted:
It is 1:35 am, and I do not see sleep coming my way, which is a normal thing for me, insomniac. I will be going for my first appt at 3:00 pm today. I'm so conflicted. I am scared, mad, sad, depressed, confused, and totally in the dark. I have "ached" all over my body for years, but assumed it was due to always being active, doing something all the time. The mere THOUGHT of not being able to be in the sun to work in my flower gardens, feed the birds, and listen to nature is like a death sentence for me. I'll know what this "lupus" is soon, but I sure hope the rhuemetologist I've been referred to is patient friendly. I get emotional sometimes and I can even get upset at doctors if they treat me like I don't have any sense. Sounds like I'm setting her up to disappoint me, doesn't it? But it's not that. It's I DO NOT EVEN KNOW WHAT "IT" IS? I've even hadd the "flares" as there called. I'm mad. Sorry.
3 Replies |Watch This Discussion | Report This| Share this:Little over 12 hrs for doc visitIt is 1:35 am, and I do not see sleep coming my way, which is a normal thing for me, insomniac. I will be going for my first appt at 3:00 pm today. I'm so conflicted. I am scared, mad, sad, depressed, confused, and totally in the dark. I have "ached" all over my body for years, but assumed it was due to always being active, doing something all the time. The mere THOUGHT of not being able to be in the sun to work in my flower gardens, feed the birds, and listen to nature is like a death sentence for me. I'll know what this "lupus" is soon, but I sure hope the rhuemetologist I've been referred to is patient friendly. I get emotional sometimes and I can even get upset at doctors if they treat me like I don't have any sense. Sounds like I'm setting her up to disappoint me, doesn't it? But it's not that. It's I DO NOT EVEN KNOW WHAT "IT" IS? I've even hadd the "flares" as there called. I'm mad. Sorry.
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lupussister responded:
Sorry to hear about your medical issues. I am wondering what the Dr. said,if u don't mind sharing.
I am 39 & was a very active person yrs ago. I was experincing the pain all over my body w/other issues as well. For yrs. now I have been limited as to what I can do,and I cannot be in the sun because it makes me ill. I don't usually let it stop me, I do as much as i can even though I know I will suffer for it. I hope your results are good. God Bless.
Report This| Share this:Little over 12 hrs for doc visitSorry to hear about your medical issues. I am wondering what the Dr. said,if u don't mind sharing. <br />I am 39 &amp; was a very active person yrs ago. I was experincing the pain all over my body w/other issues as well. For yrs. now I have been limited as to what I can do,and I cannot be in the sun because it makes me ill. I don't usually let it stop me, I do as much as i can even though I know I will suffer for it. I hope your results are good. God Bless.
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Elizabeth_WebMD_Staff replied to lupussister's response:
Welcome BelieveNheavan & Lupussister!

I am so sorry to hear of your symptoms and frustrations. Please know you have many here that can relate to what you are going through.

Continue to post, vent, stomp your feet and keep us posted about what you find out from your appointment.

I also wanted to pass along a couple of helpful links -

Lupus Health Center
Community TV - Speaking of Lupus with Christine Miserandino

Again, Welcome!
Elizabeth
Report This| Share this:Little over 12 hrs for doc visitWelcome BelieveNheavan &amp; Lupussister!<br /><br />I am so sorry to hear of your symptoms and frustrations. Please know you have many here that can relate to what you are going through.<br /><br />Continue to post, vent, stomp your feet and keep us posted about what you find out from your appointment.<br /><br />I also wanted to pass along a couple of helpful links - <br /><br /><a href="http://lupus.webmd.com/default.htm">Lupus Health Center</a> <br /><a href="http://lupus.webmd.com/community-tv-lupus-11/default.htm">Community TV - Speaking of Lupus with Christine Miserandino</a> <br /><br />Again, Welcome!<br />Elizabeth
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BelieveNheaven replied to lupussister's response:
lupussister, I am sorry that I am just now responding to this. The rhuematologist, much to my shock said i had "Scleraderma!! She wanted to take her on ANA blood test, it came back negative for it!!! She said something about my ESR being quite elevated (60 mm/hr) and I didn't get a chance to even ask what that was because she got called out to the clinic on an emergency. Since I've been back, my blood pressure has dropped so low that I passed out in my kitchen and was out for 30 mins. When I woke up, I was in a puddle of blood from my head. I was home alone, but right when I woke and thought "what the heck"..my husband came home. I didn't call my doctor because I'm sick of talking to them and they not telling me what is going own in my body. But I finally did and she had me take an MRI of my brain and a Doppler of the arteriers in my neck going to my brain (I call them the jugler veins). I had that done Thurs. Should hear from her tomorrow. When I pass out I didn't know what caused it. It was my diabetes because I check it often during the day. But, come to find out, my BP was line 84/40...and lower. So, now I have that issue to. I want to run away. Hope you are doing o.k. I still think I have lupus though because I have gotten the sores on my fingers and can fell the "tightness" around my joints. I'll try to remember to post when I hear something. I'm so confused. I'm like you, I am active, and I do WAYYYY more than I should. Just can't stop
Report This| Share this:Little over 12 hrs for doc visitlupussister, I am sorry that I am just now responding to this. The rhuematologist, much to my shock said i had "Scleraderma!! She wanted to take her on ANA blood test, it came back negative for it!!! She said something about my ESR being quite elevated (60 mm/hr) and I didn't get a chance to even ask what that was because she got called out to the clinic on an emergency. Since I've been back, my blood pressure has dropped so low that I passed out in my kitchen and was out for 30 mins. When I woke up, I was in a puddle of blood from my head. I was home alone, but right when I woke and thought "what the heck"..my husband came home. I didn't call my doctor because I'm sick of talking to them and they not telling me what is going own in my body. But I finally did and she had me take an MRI of my brain and a Doppler of the arteriers in my neck going to my brain (I call them the jugler veins). I had that done Thurs. Should hear from her tomorrow. When I pass out I didn't know what caused it. It was my diabetes because I check it often during the day. But, come to find out, my BP was line 84/40...and lower. So, now I have that issue to. I want to run away. Hope you are doing o.k. I still think I have lupus though because I have gotten the sores on my fingers and can fell the "tightness" around my joints. I'll try to remember to post when I hear something. I'm so confused. I'm like you, I am active, and I do WAYYYY more than I should. Just can't stop
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