Skip to content

    Announcements

    Attention All WebMD Community Members:

    These message boards are closed to posting. Please head on over to our new WebMD Message Boards to check out and participate in the great conversations taking place: https://messageboards.webmd.com/

    Your new WebMD Message Boards are now open!

    Making the move is as easy as 1-2-3.

    1. Head over to this page: https://messageboards.webmd.com/health-conditions/f/lupus/

    2. Choose the tag from the drop-down menu that clicks most with you (and add it to any posts you create so others can easily find and sort through posts)

    3. Start posting

    Have questions? Email us anytime at CommunityManagement@webmd.net

    How do you deal with pain?
    avatar
    Martine_D posted:
    Hello everyone!

    I would like to know how you deal with pain? Do you ignore it? Do you try to realy identifie the type of pain? Do you keep a journal of symptoms and pain in witch you quantify and qualifie your pain?

    For myself, I realy have great deal of difficulty 'cause I've had pain for more than 35 years now so I dont pay attention to it. If it comes to strong, I just take a pain killer (dilaudid) and continue what I was doing. Since I'm in the processus of diagnose, I keep a journal (at leat I try to do it daily) of my symptoms and pains but it's realy hard to do it.

    Martine
     
    avatar
    lupoid responded:
    I understand completely. I've had many sites of pain daily for more than 30 years, and I hate it when PTs and other health care providers want me to rate it on a scale because then I have to pay attention to it, and there is nothing they can do about it that's permanent. Like you, I mainly stay busy and distracted from it. If I have to tune into it, then I feel it more, and some of it is quite severe, especially where I have nerves trapped from the advanced arthritis in my neck but also in all my joints. The steroids I take for lupus help reduce all of it by reducing inflammation, but I'm never pain-free. I get acupuncture weekly though to ratchet it down a few points and make it endurable without taking pain medications, which I don't take because I need to be very mentally sharp to do my job. I hate it when people want to give solutions that are like bandaids such as heating pads etc because they are not effective enough to make a difference and just draw attention to what I'm trying to ignore to live my life. I've also found that water exercise helps some as does sleeping on a waterbed for less morning pain and stiffness. in the early years, I documented it but now I no longer do.


    Coping
    With Lupus

    WebMD's Day2Night will help you develop personal coping strategies for living with lupus – at home,
    at work, or with family
    and friends.
    Visit Lupus Day2Night

    Helpful Tips

    StressExpert
    There is a big connection between stress and lupus. Although it doesn't actually cause lupus, it certainly exacerbates it. An article from ... More
    Was this Helpful?
    19 of 19 found this helpful

    Related Drug Reviews

    • Drug Name User Reviews

    Report Problems With Your Medications to the FDA

    FDAYou are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.