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    Why so little Lupus support?
    avatar
    VCAugust posted:
    My name is VC August. I have gone through so much frustration getting a correct diagnosis and dealing with the nightmare of lupus, that I recently published a book about it. The Healing Hour. Lupus is a major women's health crises that needs much more support than it has received over decades. Fifty years before a new lupus drug? Insane!
     
    avatar
    lupylisa44 responded:
    I couldn't agree more!!! Did you see in today's news that the British Health Authority will NOT pay for Benlysta for lupus patients? I think that is a crime!!! First Treatment in 50 years and lupus patients in Britain cannot get it!

    I have had lupus for 28 years and I can say that awareness has definitely increased ten-fold over the past 25 years but still a very long way to go!

    Lupylisa
    With love, with patience and with faith, we'll make our way.
     
    avatar
    dozzi replied to lupylisa44's response:
    Apply to the healthwellnes foundation they help for some things ins dosen't
     
    avatar
    dozzi replied to lupylisa44's response:
    health wellness foundation will pay for treatment go online and apply


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