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All communities will be placed in read-only mode (you will be able to see and search for posts but not start or reply to discussions) as we conduct maintenance. We will make another announcement when posting is re-opened. Thank you for your continued support and patience, and if you have any further questions, please email

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Why so little Lupus support?
VCAugust posted:
My name is VC August. I have gone through so much frustration getting a correct diagnosis and dealing with the nightmare of lupus, that I recently published a book about it. The Healing Hour. Lupus is a major women's health crises that needs much more support than it has received over decades. Fifty years before a new lupus drug? Insane!
lupylisa44 responded:
I couldn't agree more!!! Did you see in today's news that the British Health Authority will NOT pay for Benlysta for lupus patients? I think that is a crime!!! First Treatment in 50 years and lupus patients in Britain cannot get it!

I have had lupus for 28 years and I can say that awareness has definitely increased ten-fold over the past 25 years but still a very long way to go!

With love, with patience and with faith, we'll make our way.
dozzi replied to lupylisa44's response:
Apply to the healthwellnes foundation they help for some things ins dosen't
dozzi replied to lupylisa44's response:
health wellness foundation will pay for treatment go online and apply

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