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trying to stay strong..
hbogs posted:
so i have been having problems for the last 5 years. i have had exploratory surgeries and several thousands in doctors bills later now in more debt. i am a 22 year old female and have nearly every single symptom. i usually only get the rash on my face when i used to tan or be in the sun for too long but mostly have skin sores. i am so sick of doctors always telling me everything is in my head but the pain is real. it takes me now 15 minutes to get myself actually out of my bed every morning and not getting a diagnosis does not help the symptoms and battling depression i just feel like giving up and cry. i have had blood test before but any type of test i get done no matter what they always tell me im fine. i also bleed from both ears, saw a ear nose and throat specialist with dried blood in my ears, he told me he saw nothing and i was fine. with no explanation of where the blood or clear fluid with it was coming from. $500 later. i also had two surgeries two years ago had tests done right before surgery and my body showed no infection. after surgery learned my appendix and right fallopean tube had to be removed due to a very bad infection and had a huge abcess. is it possible for someones body to be able to mask test? i need ppl to talk to my family or friends or co workers have no idea how i feel and i need help! please if anyone has any advice
lisatru62 responded:
Sounds like you're having a terrible time. It sometimes takes a long time to diagnose autoimmune diseases, they can be tricky, it took 15 years for my diagnosis. Not sure about the bleeding from your ears but blood in your nose can be due to lupus sores. Also anemia can cause nose bleeds and if lupus is effecting your kidneys you could have anemia.

While super expensive to keep going to a doctor you have to keep at them. Wait until you are feeling particularly bad or when you have a skin lesion. Lupus can be diagnosed through skin sores or cysts. That is how I received my first diagnosis of discoid lupus. I was later diagnosed with lupus nepheritis after a kidney biopsy.

Never give up and good luck.


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