Skip to content
My WebMD Sign In, Sign Up
Was diagnosed with lupus and RA a few months ago.....omg it sucks!
avatar
KMStrube posted:
Hi. i am new to the boards here. i was diagnosed with Ra last year and lupus in march of this year. i have had symptoms of lupus for years now. i don't understand why there isn't more awareness for this awful disease... i don't know...maybe if doctors would listen more and quit misdiagnosing people or telling patients it's all in their head, there would be more awareness.
Reply
 
avatar
lisatru62 responded:
Lupus has very low awareness, you're right. Doctors have a hard time diagnosing the disease because it mimics other autoimmune disorders. I was brushed off for 15 years and even sent to a therapist because they thought it was stress.

It's funny when you tell people you have lupus and they say that they know someone else who has the disease but they don't have a clue as to how it effects the human body. I've had people say they didn't think it was that bad. Although to others credit I had one person who said the doctors thought she had lupus first then found out it was lymphoma/cancer. She said she was actually relieved to have cancer since she had a chance of curing it not just controlling it.

Lupus sucks sometimes.

lisatru62


Featuring Experts

Dr. R. Swamy Venuturupalli is a board-certified rheumatologist practicing in Los Angeles. He is Clinical Chief of the Division of Rheumatology at Ce...More

Coping
With Lupus

WebMD's Day2Night will help you develop personal coping strategies for living with lupus – at home,
at work, or with family
and friends.
Visit Lupus Day2Night

Helpful Tips

Vitamin DExpert
Lupus patients are rightfully told to avoid the sun since it can flare the disease. But guess what... by doing so you are setting yourself ... More
Was this Helpful?
89 of 119 found this helpful

Related Drug Reviews

  • Drug Name User Reviews

Report Problems to the
Food and Drug Administration

FDAYou are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.