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    Was diagnosed with lupus and RA a few months ago.....omg it sucks!
    avatar
    KMStrube posted:
    Hi. i am new to the boards here. i was diagnosed with Ra last year and lupus in march of this year. i have had symptoms of lupus for years now. i don't understand why there isn't more awareness for this awful disease... i don't know...maybe if doctors would listen more and quit misdiagnosing people or telling patients it's all in their head, there would be more awareness.
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    avatar
    lisatru62 responded:
    Lupus has very low awareness, you're right. Doctors have a hard time diagnosing the disease because it mimics other autoimmune disorders. I was brushed off for 15 years and even sent to a therapist because they thought it was stress.

    It's funny when you tell people you have lupus and they say that they know someone else who has the disease but they don't have a clue as to how it effects the human body. I've had people say they didn't think it was that bad. Although to others credit I had one person who said the doctors thought she had lupus first then found out it was lymphoma/cancer. She said she was actually relieved to have cancer since she had a chance of curing it not just controlling it.

    Lupus sucks sometimes.

    lisatru62


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