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    dozzi posted:
    5 days ago I ask anyone about what they tell me how they felt after getting benlysta no replies is there anyone out there with any input
    Elizabeth_WebMD_Staff responded:
    Hi dozzi -

    The community has been a little slow this week, so while waiting for other to respond I wanted to pass along a couple of older discussions -

    Benlysta anyone tried it?
    Dr. V - question about Benlysta

    Hope this is helpful,
    yogogal responded:
    I felt fine after my initial infusions (the 3 -2 week apart ones). I had a little dizziness and nausea, but my hip and foot pain was improved. For a week and a half prior to my first 4 week wait I felt awful. I had much dizziness, nausea, and horrible fatigue. Immediately after my infusion, I felt better. I still have mild dizziness but it is not bad. I am not quite 2 weeks post infusion and hope I don't have a repeat of the previous symptoms. I am having a lot of fluid retention that my Rheumatologist does not believe is related to the Benlysta. I am currently the only patient this practice has on Benlysta so I believe they are learning along with me.
    tigermom23 replied to yogogal's response:
    Hi, I have just finished the 3 bi-weekly treatments.....lets just say that the first two were horrible on side effects. I did notice a lessening of pain, the side effects didn't last as long after the first two. I am feeling better than I have in a while...but as the weeks go by until my first monthly infusion I am starting to have an increase in the pain and joint swelling....and all the normal lupus side effects. I can't wait for the constant dose in my body so it can regulate the pain control....hopefully. Good luck!

    Thank you, Good luck, and God bless
    ida507 replied to tigermom23's response:
    I have been approved for this treatment but havent started it yet. Im getting really nervous about it. Ive had a flare for over a mth. now and I feel rotten to say the least. Do you think this benlysta is going to help you?
    ida507 responded:
    Im really wanting to know how it is working for everybody. I havent started my treatments yet and I'm a little anxious about it
    tigermom23 replied to ida507's response:
    yes, I really think it will.
    Thank you, Good luck, and God bless

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