Skip to content

    Announcements

    Attention All WebMD Community Members:

    These message boards are closed to posting. Please head on over to our new WebMD Message Boards to check out and participate in the great conversations taking place: https://messageboards.webmd.com/

    Your new WebMD Message Boards are now open!

    Making the move is as easy as 1-2-3.

    1. Head over to this page: https://messageboards.webmd.com/health-conditions/f/lupus/

    2. Choose the tag from the drop-down menu that clicks most with you (and add it to any posts you create so others can easily find and sort through posts)

    3. Start posting

    Have questions? Email us anytime at CommunityManagement@webmd.net

    Vitamin D and Lupus
    avatar
    SafariMom posted:
    I kept talking to others with Lupus who mentioned that they also had low levels of Vitamin D when first diagnosed. I started doing my own research and found this link Very helpful. It basically says that Lupus patients should also be on Vitamin D to help with their treatment.

    "Repletion with vitamin D should be carried out among SLE patients to prevent their suffering from becoming any worse. Thanks to the research carried out at the University of Oklahoma, it is evident that such a course of treatment is necessary."

    Here is the link. http://www.medicalnewstoday.com/articles/232288.php

    Has anyone else heard of this before? Are there others on this forum that take Vitamin D supplements as part of your treatment?

    If so what is the dose and frequency?

    Thanks !!!

    Bonnie
     
    avatar
    soulmte responded:
    HI BONNIE ,
    DUE 2 MY LOW VIT D DIFFICIENCY I AM NOW TAKING TWICE A WEEK - 1 VIT D2 1.25 MG ... (50,000 UNIT) .....
    IM SURE IT WILL B INDREASED SOON , STILL GOING THRU TESTS !!!
    GOOD LUCK 2 U !!!!!
     
    avatar
    SafariMom replied to soulmte's response:
    Wow, your vitamin D level must be pretty low. What are/were you symptoms with a low vitamin D level?

    Did the doctor ever say why people end up getting a low vitamin D level?

    Do you have sun sensitivity?

    Thanks for sharing with us your information.

    Bonnie
     
    avatar
    nancyj95 responded:
    I had been taking 14,000 a week and was still deficient, so my primary put me on 50,000 once a week. They will check me again in 3 months. I do know my lupus markers, which had been down were back up recently.


    Coping
    With Lupus

    WebMD's Day2Night will help you develop personal coping strategies for living with lupus – at home,
    at work, or with family
    and friends.
    Visit Lupus Day2Night

    Helpful Tips

    StressExpert
    There is a big connection between stress and lupus. Although it doesn't actually cause lupus, it certainly exacerbates it. An article from ... More
    Was this Helpful?
    19 of 19 found this helpful

    Related Drug Reviews

    • Drug Name User Reviews

    Report Problems With Your Medications to the FDA

    FDAYou are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.