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New diagnosis??
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Wen0824 posted:
I am 44 and recently was diagnosed with "mixed connective tissue disease" and I'm very vitamin d deficiant. My symptoms were extreme fatigue and joint pain in my back, neck and shoulders.. I was placed on plaquenil and 50,000 vitamin d (1xweekly). I developed a rash due to a reaction to the plaquenil (which I wonder now if this was the cause of the rash) and was taken off of it. After 3 months on Vitamin d (1x weekly) my level was still very low, so now I take it 2x weekly. My Dr. placed me on a steroid pack for the rash and it went away, not to mention I felt better than I had in years! My problem is ...when the steroids wear off, my rash comes back. Usually on my belly, chest, back, arms and top of my legs. These symptoms all sound more like Lupus to me than the mixed connective tissue disease. I now take Flexeril, Gabapentin, Diclofen. It seems the rash is never going to go away and I am just miserably tired a, itchy and in pain. Would love to hear from anyone with advise, as I am new and confused. Thanks
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Debbie5271956 responded:
My dermatologist has given me some medicines for my rash tht seems to keep it under control. I just need to remember to put the cream on my legs. First I put on Triamcinolone Acetonide Cream and then on top of it I put Elidel cream. If I do this faithfully my skin is always fine, but if a miss several days the rash comes back. Just a thought!
 
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Wen0824 replied to Debbie5271956's response:
Thank you so much! I never thought of going to see a dermatologist. I use Aveeno lotion and that only helps the itch for a lil bit. Everybody says it will go away when the flare is over and don't stress. I'm thinking of starting yog. Have you tried this?
 
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SafariMom replied to Wen0824's response:
I would definitely do to a dermatologist. Have you done internet research online to compare your rash to other rashes? What does your rash look like? It is in a circular pattern? Is it raised above the skin? etc.
 
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Wen0824 replied to SafariMom's response:
I have compared my rash to pictures online and it matches the typical Lupus rash. It's not circular or raised, just spotty and itchy, kinda like a heat rash. As of right now...it finally has gone away. I've been on vacation all week so maybe that's why it hasn't reappeared (no stress). I have another question...I haven't been officially diagnosed with Lupus (my Dr. say's I'm caught in the middle of RA and Lupus )hence the Mixed Connective Tissue disease diagnosis but she says my next option would be to start on Methotrexate. Has this drug helped anyone with the pain in the joints and the stiffness in the mornings?


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