Skip to content


    Exciting News for WebMD Members!

    We've been busy behind the scenes building new message boards for you. You'll have new and easier ways to find messages, connect with others, and share your stories.

    And, this will all be available on your smartphone or other mobile device!

    What Do You Need to Do?

    The message board you're used to will be closing in the coming weeks. While many of your boards will be making the move to our new home, your posts will not. Want to keep a discussion going? Save posts you want to continue (this includes your member profile story), so that you can re-post them in the new message boards.

    Keep an eye here and on your email inbox, we'll be back in touch soon to give you all the information you need!

    Yours in health,
    WebMD Message Boards Management

    My life with Lupus
    Rosie10deb posted:
    I was told of having lupus 18 years ago by a blood test. It was as if someone knocked me to the floor. I had no idea what it was, I had a new baby and two teenagers at home that depended on me for every
    thing. I had a job that was demanding, my boss even called me while I was in the labor room wanting to know where certain things were in his office. Can you imgaine! I think that the baby's grandmother finally asked him to quit calling. It has been one up and down hill battle ever since. I take so many med's, it is crazy. Lupus has taken most of my youngest son's years away fromhimas he worrys so much about me. Most of my body is changed, some parts are gone. But the one thing that it can not takr awayfromme is my love for my family, Husband-Children-Grandchildren, andthebest of all my faith in aloving God. Through all of the pain and yes there is alot of it Iknow that he has carried my through. Rosie10deb
    Elizabeth_WebMD_Staff responded:
    Very well said Rosie10deb!

    Welcome to WebMD! We admire your attitude toward your family and how to deal with lupus.

    Have to say I got a chuckle out of hearing your boss calling you while in labor! Wow!

    NanaJudy6 responded:
    Yeah, Rosie..I feel the same and you are an inspiration to me as I am trying to accept hearing that I have lupus..I have searching for answers for almost three years now. At first, everything pointed to MS but I did not have active lesions so they started looking at lupus and at this point, this is what we are dealing with.

    I, too, have alot of faith in my Lord and know he will see me through and that sustains me everyday. I have started Plaquenil about six weeks ago and am waiting to feel better, Dr says it can take up to 4 months to notice a difference. I am ok with that, have been hurting alot longer than that. Just want to know what to expect. Dr did not tell me alot when he told me results of my ANA..thinking he is waiting to see how I respond to the meds and will elaborate further when I go back to him.

    You hang in there as I will and maybe we can help each other. I have not had alot of response out of this website so I was a little disappointed but I will give it another try.


    Rosie10deb replied to Elizabeth_WebMD_Staff's response:
    Thank you so much. Yes, he is the character. God's Blessing's
    Rosie10deb replied to NanaJudy6's response:
    I was not going to post my story either. I will be happy to help you in any way that I can. Our bodies do not respond well to any changes. Meaning- med's, enviroment changes, or if God help when we get a little thing like just a cold. Your Dr. sounds like my13 team of Dr.'s. As sad as it is we just have to do the waiting game. I will pray for you as time goes on, and believe me prayer does work. God's blessing's.

    With Lupus

    WebMD's Day2Night will help you develop personal coping strategies for living with lupus – at home,
    at work, or with family
    and friends.
    Visit Lupus Day2Night

    Helpful Tips

    There is a big connection between stress and lupus. Although it doesn't actually cause lupus, it certainly exacerbates it. An article from ... More
    Was this Helpful?
    19 of 19 found this helpful

    Related Drug Reviews

    • Drug Name User Reviews

    Report Problems With Your Medications to the FDA

    FDAYou are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.