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Nunbaddy posted:
I was dx with lupus in the hospital back in 08. Ever since, every doctor i have seen has challenged the dx. I'm sick, worn out and ready to give up. I'm not trying to hang my hat on lupus, I just want an answer and a treatment plan. any suggestions?
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lupylisa44 responded:
Hi I am sorry you are having such a hard time with your doctors. If I may ask, what led the doctors in the hospital to dx you with lupus? What type of doctors are challenging your dx? Are they rheumatologists? If not, you may want to see a theumatologist. Have they said why they don't think it is lupus?

Lupus is very difficult to diagnose and there is no single blood test used for diagnosis.

Systemic Lupus Erythematosis (SLE) is diagnosed using 11 criteria. If you have 4 out of 11 it is likely you have lupus.

  • Face rash, which doctors call a malar rash, that is butterfly shaped and covers the bridge of the nose and spreads across the cheeks
  • Scaly rash, called a discoid rash, which appears as raised, scaly patches
  • Sun-related rash, which appears after exposure to sunlight
  • Mouth sores, which are usually painless
  • Joint pain and swelling that occurs in two or more joints
  • Swelling of the linings around the lungs or the heart
  • Kidney disease
  • A neurological disorder, such as seizures or psychosis
  • Low blood counts, such as low red blood count, low platelet count (thrombocytopenia), or a low white cell count (leukopenia)
  • Positive antinuclear antibody tests, which indicate that you may have an autoimmune disease
  • Other positive blood tests that may indicate an autoimmune disease, such as a positive double-stranded anti-DNA test, positive anti-Sm test, positive anti-phospholipid antibody test or false-positive syphilis test
  • lupylisa
    With love, with patience and with faith, we'll make our way.


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