Skip to content
My WebMD Sign In, Sign Up
Going to another Doctor
avatar
Blakelyjoe posted:
I have been in and out of Doctors offices' for way to long , keep getting passed around to new Doctors , I went to a dermatologist had a biopsy all they say is its auto immune , My Doctor says he feels I have lupus all the symptoms I have piont to lupus . but ana was neg. now I am off to a new Doctor . I feel no one wants to say the lupus word to me . I was treated with prednisone ,tappered off, what a nightmare that was . I feel terrable still and I have had so much pain in my right upper torso .like an alien is trying to get out , lots of swelling in my hands and feet and still having swallowing issues , brain fog is so bad lately I m barley making it through a work day and I am so tired . I feel My job is at risk . I need this job I need my insurance . I am on anti inflammation meds
and a thyroid med . I also have 10 other meds that I quit taking for a multitude of different issues . fybromyalgia , Ib, acid reflux, arthitis Antihistamine , muscle relaxers ect. ect. I am hoping for a staight forward answer and hope this Doctor is able to help me . Is this typical to have to go to so many Docs and specialist ? I feel i f I took all the meds perscribed to be I would have liver failure
Reply
 
avatar
lupycakes responded:
Hi,

Unfortunately it takes a village of doctors to treat lupus. Going to lots of doctors, having lots of tests, doctors not wanting to commit to a dx seems to be pretty standard for autoimmune diseases like lupus. Are you under a rheumatologist's care? They are the ones who treat autoimmune and help co-ordinate your care with the other physicians.

Hope you get some answers and relief soon,

Lisa
 
avatar
Blakelyjoe replied to lupycakes's response:
Thanks , I just got back from the new Doc. he seemed very thorough . He did find a lump on my thyroid and so i am going in for an ultrasound on that and my liverhe also took lots of blood . I just got off prednisone a week ago and the skinleasions or rash is already coming back I cant beleave this . I am a bit freaked out ! I am also going back to the dermatologist the 15th I am thinking they will put me back on pred. the new Doc . wants to get these test done and then go from there . he did mention sending me to a Rheumatologist . I guess its a day at a time


Featuring Experts

Dr. R. Swamy Venuturupalli is a board-certified rheumatologist practicing in Los Angeles. He is Clinical Chief of the Division of Rheumatology at Ce...More

Coping
With Lupus

WebMD's Day2Night will help you develop personal coping strategies for living with lupus – at home,
at work, or with family
and friends.
Visit Lupus Day2Night

Helpful Tips

Minimizing steroid side effectsExpert
It is likely that most lupus patients will at some time be taking steroids to control some aspect of their disease. In order to minimize ... More
Was this Helpful?
75 of 105 found this helpful

Related Drug Reviews

  • Drug Name User Reviews

Report Problems to the
Food and Drug Administration

FDAYou are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.