Skip to content

    Announcements

    Exciting News for WebMD Members!

    We've been busy behind the scenes building new message boards for you. You'll have new and easier ways to find messages, connect with others, and share your stories.

    And, this will all be available on your smartphone or other mobile device!

    What Do You Need to Do?

    The message board you're used to will be closing in the coming weeks. While many of your boards will be making the move to our new home, your posts will not. Want to keep a discussion going? Save posts you want to continue (this includes your member profile story), so that you can re-post them in the new message boards.

    Keep an eye here and on your email inbox, we'll be back in touch soon to give you all the information you need!


    Yours in health,
    WebMD Message Boards Management

    HELP?
    avatar
    dev1122 posted:
    Looking for any ideas or advice? 30/f with severe muscle pain, burning (like lactic acid buildup) in shoulder and upper arms. I have been to 5 dr this week. My CPK was 1,000 on tuesday and ana was 1:160. I have had small bouts of this at least twice a yr with only mildly elevated CPK (200-300) and mild positive ana. I was competing in cross fit competitions a week and a half ago and now can barely even put my hair in a pony tail or lift a two yr old. I had another blood draw yesterday and CPK was down to 255? Still having same symptoms. I started 60 mg prednisone on friday and have not felt a bit better. Nothing helps! I am so scared because I feel disabled. Other weird symptoms: fever 99-101 for weeks, what I perceive to be weakness in my quads and arms (If i even lift them they tremble like a leaf) but I had an EMG done and she said it is normal. My shoulders and elbows feel hot to the touch but are not swollen, headaches for weeks. The weird thing is my sed rate is normal and c-reactive is normal. If this is not inflammatory and I am not getting relief from prednisone or anti inflammatory what could this be? Has anyone had similar experiences? I just want to feel normal again. Every doctor says something is wrong but they don't know what because I don't fit into one particular category.
    Reply
     
    avatar
    1stLadyDi responded:
    Polymyositis, maybe? Not sure what can help you & hope you're feeling somewhat better now. I am thrilled for you that you had the strength & energy to participate in cross fit competitions and pray that you get better soon so you can continue in something that you seem to enjoy.


    Coping
    With Lupus

    WebMD's Day2Night will help you develop personal coping strategies for living with lupus – at home,
    at work, or with family
    and friends.
    Visit Lupus Day2Night

    Helpful Tips

    StressExpert
    There is a big connection between stress and lupus. Although it doesn't actually cause lupus, it certainly exacerbates it. An article from ... More
    Was this Helpful?
    19 of 19 found this helpful

    Related Drug Reviews

    • Drug Name User Reviews

    Report Problems With Your Medications to the FDA

    FDAYou are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.