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Fatigue, Exhaustion, reallly bad pain in arms, legs and upper back
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goolar posted:
Lately, I have been feeling very weak. My doctor did some blood work in september and told me I have Lupus, so she sent me to a rheumotologist. To be honest, she didn't seem to care at all and sent me back home. Told me to give her a call if I get any other symptoms and gave me voltaren. I have fibromyalgia, so she said it may be that.

I am tired of going to doctors. It's been constant doctors/specialist visits for over 2 years. Still no answer. My doctor insist on Lupus. I have so many questions. But my main concern is the way I have been feeling since friday. Which includes mood swings. Maybe its due to the extreme pain and fatigue I have been having. I feel very tired. Like I am dehydrated or have been awake for days sort of feeling. help?
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1stLadyDi responded:
Sorry that you are feeling so bad. I have been there & still get there at times. As a matter of fact, it hasn't been too long since I stopped having 12-14 hr sleep days. I felt like I was sleeping my life away. I don't know if I would be too tolerant of health care professionals who didn't give me the time of day or didn't seem to care about me. That's when I'd be looking for a new doctor because of the seriousness of this disease.

I would say that it would be good if you can get as much rest as you can, which may not necessarily be sleeping, but just stopping (or slowing down) activity. That is a hard thing to do for most women.
 
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nancyj95 responded:
Find another doctor! You need one who LISTENS to you! Lupus gives each person different symptoms and you doc needs to get to know you and your body. So I'm not kidding when I say find someone else. Get as much rest as you can, listen to your body-it is the best thing you can do. Good luck and hope you're feeling better soon. This is a great place to ask questions. We aren't docs, but we have been where you are.
 
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klacp responded:
I have Fibromyalgia and Lupus (plus other things.) I feel pretty much like you do. I'm tired most of the time, can't sleep very well at night and hurt in my arms and legs and feel like a rag doll at times. I'm in physical therapy right now for my right arm and neck which give me the biggest fit. Still waiting and hoping the physical therapy works. Hope you get your answers. Mine seem to be on-going problem.

I was diagnosed 2000 for Lupus and FM sometime in the 1980s.
 
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Angelina7 responded:
You definitely need drs who will listen and help you! Do not settle! You have many years ahead of you. Ask about CYMBALTA & tell them how down u have been feeling fro pain, as i swear I wouldn't be here without it! Pls keep posted - we all care! please keep ur chin up!
 
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FtWLupy responded:
The most difficult part of this disease is finding the right doctors. And when you do find the right one, you are apt to have to wait hours to see them because they spend a lot of time with each patient and run behind on their schedule. You must take the matter of your health care into your own hands. I know it isn't easy. I'm an RN and its still difficult for me. You must find another doctor who takes your suffering seriously. Search the Internet for one in your area who treats Lupus. The one I found is a neurologist and he has been wonderful in diagnosing but will refer out to pain specialist for pain control. Suits me just fine. Bottom line- don't give up. With lupus you have to be relentless.
 
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lisatru62 responded:
Don't give up, it took ten years to get a diagnosis for me. I went to the doctor every few months with rashes, fatigue, hair falling out and cysts. They didn't seem to care. I finally got mad and demanded a referral to a dematologist and she was the one who said it looked like an autoimmune disease. She order a simple but expensive round of blood tests.

I was then sent to a rheumatologist who tried to brush me off with a prescription and it felt like she didn't care. On the off chance she asked if I had ever had a cyst. I did of course and said I had one on my leg currently. Had it biopsied and got my answer, SLE.

Now they take me seriously and of course I feel better but have to take a massive number of prescriptions daily. Keep at them, don't let them tell you your crazy or a hypochondriac. It's your life not their's and you have to keep fighting.

Good luck.

Lisatru62


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