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    Shingles with lupus
    avatar
    carylea posted:
    I had my first outbreak of shingles at age 12, long before my diagnosis of lupus. I'm sure that among many other signs should have raised a few eyebrows with my doctors! I have since had shingles 12 times, with PHN on my scapular area that has been continuous since 1989. My rheumatologist has told me that Zostovax will not help me completely, only POSSIBLY lessen the severity of the outbreaks.
    Reply
     
    avatar
    lupylisa44 responded:
    I have had shingles 20 times in the 30 years I have had lupus, so I feel your pain!

    Are you taking immunosppressant medications? If yes, I was told not to get the zostovax because it is a live virus vaccine.

    http://www.cdc.gov/vaccines/vpd-vac/shingles/hcp-vaccination.htm

    My rheumy suggested I take valtrex on a tefular basis to avoid getting them again, but I chose not to do that.

    Lupylisa
    With love, with patience and with faith, we'll make our way.
     
    avatar
    YannisKoukla responded:
    I just had my first shingle outbreak, folks with lupus are 70% more likely to get shingles than the average population, I sure wish the Rheum. would have recommended the vaccination beforehand.....


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