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pete1980 posted:
Hi,ive just met the most amazing girl who also has lupus.I had never heard of this aswel starting a relationship with her is going to be very different..Im just asking how or what i can do to make her feel good about herself and just feel good and i need to learn about lupus so i understand and be more supportive..
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lupylisa44 responded:
Hi Pete

There is lots of great info about lupus on this board in the Tips and Resources sections located on the right side of the page . I suggest you start there. Here are some websites I use on a regular basis to find information about lupus:

www.lupus.org

http://www.uklupus.co.uk/

http://www.lupusalliance.org/

http://www.aarda.org/

By just asking how you can support your girlfriend you have a great star! Guys like you are tough to find-she's a lucky girl!

The one thing I can tell you is to be understanding when she doesn't feel well and don't make her feel guilty for not being able to participate in something. Lupies can plan FOR something, but many times we cannot plan ON them . The thing about lupus is that one never knows how they will feel from one day to the next.

You should have her join our group! There are also many groups for support on facebook.

Lupylisa
With love, with patience and with faith, we'll make our way.
 
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pete1980 replied to lupylisa44's response:
thankyou for replying and posting those links and any other info along the way pass it my way"026Thanks again


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