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    Symptoms/new to group
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    An_254681 posted:
    Hi All,

    I have a few months wait until I get in with a Rheum Specialist. I know no one is a doctor and/or can dx on the internet. I was just hoping you all can give me your opinion on if I am looking in the right direction.

    I have had symptoms for 13 years now, since I was 17.

    Over those 13 years the progress of my issues have been:

    Severe bone pain in 2000
    Sores in mouth - frequently
    elevated RA
    extreme fatigue
    ana positive
    hair loss - by 2003
    development of pcos (polycystic ovaries -inflammation!)
    ana negative
    Fibromayalgia dx
    Kidney issues - frequent utis 0 in 2005
    bells palsy
    Nuerological symptoms (fainting, dizzy, siezure like episodes)
    Immune testing showed trouble with EBV virus, Parvo virus titer's high (couldnt supress these virus for unknown reason)
    GI pain - later found inflammation in my right kidney and galbladder through testings.
    Issues of brain fog develope and become worse, add like symptoms become worse. - 2011
    ANA negative, RA positive (Not Rhuematoid arthris - ruled out)
    tested positive for lyme disease - and treated on going for lyme - 2012
    ( Helped a good deal but not cured )
    Inflammation in kidney and galbladder continue past lyme treatment.

    Was told by immunologist b/c i am ana negative that I do not have lupus.

    The ANA has fluctuated for me over the years.

    DO you all think getting a Rhuematologists' opinion re: lupus is a good idea?

    Thanks! Merry holidays to you all
    Reply


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