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Symptoms/new to group
An_254681 posted:
Hi All,

I have a few months wait until I get in with a Rheum Specialist. I know no one is a doctor and/or can dx on the internet. I was just hoping you all can give me your opinion on if I am looking in the right direction.

I have had symptoms for 13 years now, since I was 17.

Over those 13 years the progress of my issues have been:

Severe bone pain in 2000
Sores in mouth - frequently
elevated RA
extreme fatigue
ana positive
hair loss - by 2003
development of pcos (polycystic ovaries -inflammation!)
ana negative
Fibromayalgia dx
Kidney issues - frequent utis 0 in 2005
bells palsy
Nuerological symptoms (fainting, dizzy, siezure like episodes)
Immune testing showed trouble with EBV virus, Parvo virus titer's high (couldnt supress these virus for unknown reason)
GI pain - later found inflammation in my right kidney and galbladder through testings.
Issues of brain fog develope and become worse, add like symptoms become worse. - 2011
ANA negative, RA positive (Not Rhuematoid arthris - ruled out)
tested positive for lyme disease - and treated on going for lyme - 2012
( Helped a good deal but not cured )
Inflammation in kidney and galbladder continue past lyme treatment.

Was told by immunologist b/c i am ana negative that I do not have lupus.

The ANA has fluctuated for me over the years.

DO you all think getting a Rhuematologists' opinion re: lupus is a good idea?

Thanks! Merry holidays to you all

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