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roxylyles posted:
I was just recently diagnosed this week with Lupus. I have had symptoms since my childhood. At 29 years old, I finally have an answer to why I feel like I do and why it is all the time. My emotions are so up and down right now. Should I be relieved to finally know what I have? Finally I have a doctor (just someone) that will listen to me and my body.
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castiem responded:
its not fun , i just also got recently diegnosed with lupus and a few months befor that i started the flare ups and really feeling what pain was its very scary and this isnt an easy thing to deal with but im glad u have a dr that will listen to u because i've got one that doesnt im curently loking for a new one ...and you gotta feel however you feel and just go with it because theres no other way to go i guess we just gota breath and keep going on day at a time because this lupus crap isnt any fun and not an easy thing to deal with.
 
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feelin_lupie responded:
It's hell. I'm having a hard time coping lately as well. The bloodwork came out positive before I had any symptoms in Oct. 2012. All we could do was wait for it to come. In April we tried Plaquenil..suprise I'm allergic. Pain started in May, bad pain. I could barely walk, was stuck in bed for hours, couldn't sleep, move, think, eat, lost weight, lost hair, you name it. I tried to deal with it on my own for 3 months. Was on steriods for a while, officially diagnosed in August and now I'm on Methotrexate. Thank god for my doctor. I'm only 22. I shouldn't have to deal with this, none of us should. It's hard to find a middle ground between trying to be strong and hating life. I was happy I had an answer, but even with almost a year of preparation, I wasn't ready to hear it. I think you should be happy too, and now we need to spend our energy on getting better and trying to see something positive in all this.
I don't know about you, but it makes me feel a lot better seeing how many people are going through this with me. I hope it helps you too.
 
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roxylyles replied to castiem's response:
Thank you so much. Sometimes I just feel that my emotions go so up and down, I should stay to myself so that I don't hurt the people around me
 
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roxylyles replied to feelin_lupie's response:
Thank you. I does feel good to not feel alone. I do have a sense of relief to finally know what I have and I can finally move forward.


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