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Lupus is a pain in my.. EVERYTHING- Normal?
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feelin_lupie posted:
I had + blood work in October 2012. No symptoms yet. All we could do was wait and see. In April 2013 we tried and failed with Plaquenil due to an allergic reaction. In May I started with the pain. BAD pain. I was almost invalid. Nothing helped. I lost weight, huge chunks of hair, my spouse was gone all summer so on top of all the pain I had to take care of everything as well. After grocery shopping I would be stuck in bed for 5 hours before I could move. Had to take baths to numb just enough of the pain to sleep for an hour. You get the picture. In August I was officially diagnosed. After I weaned off the prednisone I realized the methotrexate wasn't helping much so I'm also taking Nabumetone. The appt after we increased my dose to 15 mg a week was amazing!! No pain, perfect blood work, and only have to see my rheumy every 12 weeks. All good news!! Well that night the pain started again. I'm back to taking nabumetone, stopped "working out" which was only resistance equipment for 3 minutes. I don't know if I am just being a wimp and I will have to live with this the rest of my life? Or is it something I need to go in for? Where do you draw the line? I deal with crazy needy patients at work all the time and I refuse to become one!
What do you think??
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