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I hate "the lup"
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duncanv posted:
So just when i feel like i am getting a handle on my lupus, my BP starts to go all crazy again.... I have Lupus Nephritis ( lupus of Kidney) my kidneys were actually at about 13% functionally when i was diagnosed with lupus in december (2013)... anyways i have been doing alot better , at least i feel alot better, sometimes i even think about having my doctor retest me for the 5th time just to make sure that i do actually have lupus... because i just really dont think their right...but whatever... the point is i am finally starting to feel ok until recently i have started to have my severe headaches and shooting pains throughout my body... and now my feet are swollen!!!! WHY DONT I HAVE CONTROL OVE MY BODY!!!!!!!. it makes me sad to think that i will have to deal with this for the rest of my life.... my doctors say that its just a flare up and soon it will pass, but i want it to go away ...NOW!!! FOREVER !!!.. am i crazy, does anyone else feel like they are losing control of their body.
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lupylisa44 responded:
I also have lupus nephritis (this is my second go around with it) and it has started to get better thanks to starting Benlysta. I have Stage V membranous glomuleronephritis. do you know which stage you have? If you have Stage III or IV Benlysta might not work. Are you taking BP meds for your nephritis? The reason I ask is because I had a reaction to them which manifested as severe shooting nerve pain in my arms, legs and feet. Have you had a kidney biopsy yet? What is your doctor using to treat your nephritis? Hang in there! It gets better!

Lupylisa
With love, with patience and with faith, we'll make our way.
 
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tay1998 responded:
Hi my name is Taylin. I am currently a year 11 student and I am doing my research project on Lupus. Your post stood out the most to me, kind of the lifestyle part. I would like to ask you a few questions if you don't mind? my email address is taylin.bishop141@schools.sa.edu.au , so if you would be happy to answer a few questions please email me thankyou so much


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