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    Some help and insight please
    avatar
    ashday28 posted:
    Hello, my grandmother was diagnosed with Lupus at least 10 years ago. She's gotten worse throughout the years. She can barely walk and is in a wheelchair most of the time. She has no energy, severely depressed, etc. She lives near the Oregon/California border in a small town where none of the Doctors really know anything about Lupus. About 10 days ago, her neck was really stiff and she was in severe pain. She couldn't move, her ears have sharp stabbing pain in them, she can't hear anything, she's had drainage and blood coming out of her ears, coughing up blood, and she hasn't eaten anything for about 6 days now. It's really scary. The Doctor took her blood, did an x-ray and c scan, they don't really know what's wrong. They told her it is a severe sinus infection, possibly spinal meningitis, pneumonia, a brain annurism, and some other possibilities. I just wanted to know if anyone else has experienced this?
    Reply
     
    avatar
    allie_bf responded:
    Hi, it is scary to go through a health crisis like the one that your grandmother experienced. I hope that her doctors were able to help her. Unfortunately, it can take time to sort out a diagnosis when anyone has severe symptoms that could be from multiple problems, and with lupus thrown into the mix, there are that many more possibilities. Lupus patients are routinely given medications to suppress the immune system; while those drugs will ease inflammation, they also allow infections to get out of control quickly. Many, if not most, people with lupus have had this happen the them at some point, but it can be particularly serious with older people. Some infections can be quickly overwhelming, so her doctors may not have realized (and she may not have realized herself) how sick she was becoming until she got the point that you describe. Please let us know how you, and she, are doing.


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