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Living with CNS Vasculitis / Lupus
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s_teward posted:
I have been diagnosed with cns vasculitis, and the doctor does not know if it is related to lupus, for which I have been diagnosed.

my blood test all come back within normal limits, showing positive ana/lupus and the spect scan comes back showing extensive vasculitis inflammation, with 7th and 8th cranial nerve inflammation. Is this all related?

what kind of life am I looking at in the future?

will my headaches be a part of my life?

how do I know when I vasculitis is in remission, and how will I know when vasculitis is flaring, when so few symptoms show in blood test?

thank you for your time.
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seejayd responded:
Feeling a little disappointed..was hoping to get a response.

is there anyone with similar experience?


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