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mnjeepguy posted:
Hello everyone. I have been on the fibro forum for a few years. Now. I am not diagnosed but treated for fibro. I don't fit the typical profile for fibro or Lupus. I am male and 39 years. old, tall and slim. I have had brain fog for over a decade off and on. My joints have hurt since I was a teen and they make a lot of noise, popping and grinding. I have recently been given tests for everything under the sun. Lupus, RA, Fibro, Lyme, you name it. My blood work is great, they checked 3 times in 4 years.


In the last three years my joint pain is worse. I was put on Gabapentin and am up to 300mg 3x a day. I have spinal issues that cause daily pain. I also have a face rash that is mostly under and on my nose that would not go away. last summer I had a sudden hearing loss in my right ear. The specialist thought it was an auto immune disease attacking my body, seeing n other reason for it. I was checked again and nothing showed up. My RH gave me Hydroxychloroquine to try. I am on month 4 at 200mg per day. My rash is at bay, only mild redness some days. My feet were like glass every night and are better, knees, hands, wrist, elbow and shoulders, even my back hurts less.


It is possible early Lupus? I know something is up even though it does not have a name yet. My RH agrees and is treating me as such. Any thoughts or information would be greatly appreciated.


Cory
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mnjeepguy responded:
I forgot to mention. With the standard treatment for my ear doc of Prednisone and ati-viral meds, my hearing all came back. I noticed I felt like I was 20 again. I had no pain at all while being treated with steroids. Once off I went back to normal.


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