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tarakarr posted:
About a month ago, my family Doctor diagnosed me with lupus.
the ana test came back positive. I am exhausted all the time, lower back, hip, leg and knee pain. my ankles hurt. and I have little knots on my toes. my body just feels stiff. every now and then I get a rash across my lower belly and thighs. usually gone by morning. he sends me to a rheumatologist, upon my visit he tells me he has received nothing from my doctor and asks me why I am there. he asks me a few questions and then gives me a quick physical exam. back in his office he tells me I do not have lupus. that most women in their 40's give a false positive ana test. he suggests I start exercising. I don't know how a rheumatologist works, so my question is can he diagnose or dismiss lupus by just a physical exam? I don't want to go a few years and then they say oops...any one have any suggestions?
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hoosiermommy responded:
While it's true that a positive ANA is not definitive, there are other blood tests that can detect other issues, and that can help with a diagnosis. You are right to want some answers, and not wait. It took 3 1/2 years for me to be diagnosed, but, luckily, my doctors suspected lupus or RA and had been treating me appropriately, so when the diagnosis finally came, I had not suffered any organ damage.

If I were you, I would do some online research and print any info about testing that sound like they might be helpful. Take that to your GP, and see if s/he can refer you to another rheumatologist. Even if what you have is not lupus, something is not right, so you need to push people a little bit.


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