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smilemo7 posted:
Hi, I am new here. I am 32 years old and have been battling lupus like symptoms for almost a decade now. I have had neg ANAs, then pos. ANAs but the doctors then tell me it isn't positive enough. I have had flare ups that will last for 3-8 weeks and then disappear as weird as they appear. Severe joint pain, extreme fatigue, sun rash, low fevers to name a few symptoms. Flares usually come in early fall and spring however I am having my first summer flare up right now. I have been tested for it feels like everything and diagnosed with Fibro, Adrenal insufficiency, hypothyroidism. I went to 2 rheumies who diagnosed me with undifferentiated connective tissue disease and then when they tell me there is nothing more they can do send me to a new rheumie who tells me they don't think I have connective tissue disease. Needless to say I am extremely frustrated and am starting to feel a little crazy, lol. I am beginning to think that it is time for me to go to a research hospital such as the Cleveland Clinic or Johns Hopkins and was wondering if anyone has had good experiences with these or have any other good recommendations. Thanks for letting me vent and God bless! -Melissa
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