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Saliva Glands Pain
DarkRose321 posted:
I'm beginning to agree that it may have been a good thing I couldn't get the Tamiflu. I'm wondering if I even really have the flu. Last month my doc said it was strep, but he didn't do a strep test... this month, flu because strep test was negative... I will hear the results of the flu test eventually, but each time the illness feels the same. I get flu-like symptoms mixed with right jaw pain. Yesterday I realized that my jaw pain is not my throat, ear, or wisdom tooth, but my saliva glands. I woke up with a swollen sore place under my tongue, and when I tried to eat or drink, each time I salivated it was extremely painful. I'm sure this has something to do with Sjogren's because the first day I had this my eyes were swollen shut and extremely dry. I just had no idea that Sjogren's flares could be like this with fevers, body aches and stuff. Appearently there is a cold going around, but no one else in my family is getting more than a runny nose for two days. Anyone else here have Sjogren's or problems with thier saliva glands getting infected? What do you do about it? I found out antihistamines are not good (found out the hard way) but warm compresses and lots of fluid drinking seems to help (after the initial pain of the glands getting stimulated). I'm not even sure if I should call my doctor about this or just wait and mention it at the next appointment in March. Of course, I'll call if I am still sick in another week or two or it just gets too painful. Alicia
DarkRose321 responded:
My doc just called... I don't have the flu. He wants me to go to his walk-in tomorrow. Since this has been going on a while and antibiotics didn't work last month, I'm worried I might have to have the gland removed. Ba! :angry:
sleteacher1 responded:
Alicia, My sister has Sjogrens. Unfortunately before being dx one of her large saliva glands kept getting infected so they removed it. Now when the other glands get infected they give her steriods until it's under control. Removing it would be an absolute last resort. Good Luck Teach
itsweavebee responded:
Hi, I have trouble with my gland getting blocked due to a small stone. It will really swell when I try to eat something. The best thing to do for it is to suck on a lemon drop candy. The sourness of the lemon helps pop them out or move them off the gland. It's really annoying and painful and I'll have trouble for a few days at a time but so far have been able to remedy it with the lemon drop. It's what my doctor recommends too. Hope you feel better soon! Lisa
lupyk8t responded:
I would recomend you try sucking on a lemon drop may be enough to dislodge something if its a blockage. I used to do salivary gland imaging procedures and we used these lemon drop candies to stimulate the salivary glands. We did a pre and post candy picture to see if there were any differences or blockages of the salivary glands. But often the act of sucking on the candy made the patients feel like something had changed. And hey, its cheaper than surgery!!! Kate
DarkRose321 responded:
Thanks for all the responses :smile: I guess I have just been freaking out because this disease makes me so mad. Every new symptom is like a slap in the face, and every time I find out it is all due to autoimmune disease, I feel like I die a little inside. I try to stay positive, but then I am dragged back into reality with episodes like this. I know I have autoimmune disease, but I guess there is still that small part of me that wants to believe it is all just a big mistake. Alicia
Kimbraml responded:
Hi Alicia, I am new here and I have sjogrens and lupus. Yes, it sucks. I have alot of ear pain and have had for years. A blood test detected sjogrens back in June. I knew I had dry mouth but thought maybe some of the medicines I was on was causing it. My Dr. says there is no medicine to treat sjogrens that will stimulate the saliva glands. He did say to suck on sugar free candy because sugar will only help decay your teeth and without the saliva glands you are missing an enzyme that breaks down food and helps clean your mouth. Luckily, I don't have the dry eyes, yet. I also have lupus that is flared up right now. When one flares , so does the other. So, I am pretty miserable right now. My Dr. says that the anti-malaria drugs do help both diseases. I also take a low dose of predisine. Once flared nothing seems to help. Rest and pain killers do take the edge off , but my pain never goes away completely. There is some fake saliva that you can buy, but I have never tried it. It kinda sounds gross to me, but it is on the market according to my Dr. I too, feel hopeless at times. I just keep praying it will go into remission and never return. My Dr. says that does happen. So, that is the hope I hang on to. I haven't read that on here from anyone but it can happen. Keep the faith and continue to take good care of yourself and just maybe you will get lucky. KIM

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