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Not Everyone's Lupus is Created Equal
NancyEllenB posted:
Nor are any of us the same. I think it's really important to find health care providers who are willing to look beyond the disease, beyond the test results, and more at the patient. I'm not saying to disregard doctor's orders, but I am saying that health care providers should be looking not just at what the numbers/tests say, but also what is actually occuring in the patient's life.
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renalupie1 responded:
I couldn't agree more! In my case, the lupus was much much worse as I took care of my mother and her end of life came upon us. She had her legs amputated within 4 months of each other, and my Rheumy knew exactly how stressed out I was! I flared terribly, and he made sure I had a window of how much steroid I could take without calling him to up the dose. He knew I needed the ability to adjust to the stress of the situation.

After she passed away, my lupus nearly vanished! I am a lucky gal for having such a great rheumatologist.


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