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My lupus story
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pooser25962 posted:
I was diagnosed with SLE and fibromyalgia about 2 1/2 years ago although I had symptoms for several years before finally getting a diagnosis. I've been told I was crazy, it was all in my mind, I was lazy, I was a hypochondriac, even had a rheumatologist tell me I need to see a "shrink" cause I was imagining it and the doctor that referred me needed to go back to med school, you name it I heard it.


To all those out there who are newly diagnosed or trying to get a doctor to pay attention to all your symptoms so you can get a diagnosis the best advice I got was to keep trying you are your own best advocate.


The doctors not only have me on plaquanil for the lupus but also on Cymbalta for pain, Abilify for depression, and methylphenidate for the fog. I also take a multi-vitamin each day. It took a bit to find the right combination for me as it does with everyone but this works great for me.


I guess what I'm trying to say is there are other medications besides the normal ones for lupus that help with the other symptoms even though I had to go to a "shrink" to get the help it is well worth it.


Don't get me wrong I still have bad days but I have more good than bad for now. My life is almost normal. Hopefully, this will help someone else out there.
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melissa_513 responded:
Makes me feel better i am not the only one who has been called lazy. i dont want to feel like this.
 
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julie1221 responded:
What do you mean by the 'fog'?


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I was diagnosed with SLE and fibromyalgia about 2 1/2 years ago although I had symptoms for several years before finally getting a ... More
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