I was born with what is known as: Mayer-Rokitansky Syndrome. Basically what this means is that I had two functioning ovaries, one normal sized, one slightly smaller. What I was missing was one kidney, my whole uterus and my cervix. I have had surgery to correct the cervix issue, but having a skin graft done to basically build a new vaginal wall. At 22 I lost my right ovary to a cyst the size of a baseball. Last November I went into a specialist to see about freezing embryos just in case something else went wrong with the last ovary. Sadly when my doctor did the ultrasound he discovered that the cyst on my left ovary was actually two cysts, one the size of an apricot inside of one the size of a baseball, and it had to be removed.
I have known from the time that I was 15 that I would never be able to carry my own child growing in me. I would never have that connection from conception to birth, and had to come to terms at 22 that my chances were slimming down. When they took my last ovary it shoved me head first into the deep-end of menopause and I'm taking all the meds, I'm doing what I was told and nothing seems to be helping. I am looking for anyone with advice that has gone through menopause and can give me advice on how to make it through. I have upped doses of medicines, talked to my doctors, I just feel alone and lost, all of my friends have kids, and grandkids for some and trying to have new babies, and I don't feel like they know what I'm going though.
Dear An_250942, Sorry to hear about all that you have been through. I hope that the folks who have done your gyn care have been providing you with some linkage to some counseling folks, because what you have had to go through is obviously very traumatic. From a strictly menopausal point of view, you need to be on some estrogen-presuming I am reading your heading correctly, you are 28 years old. If you are not prescribed some estrogen, you will have an increased risk of bone loss (osteoporosis) and heart disease. And you need to take enough estrogen to keep you from getting hot flashes, and to keep you sleeping at night. You may also do well with some additional testosterone therapy. Ovaries make testosterone as well as estrogen, and some testosterone may give you a better sense of well being. And I know that some of the members of our community will also give you some good pointers. Good luck, Mary Jane
I cannot imagine how hard it must be for you. I am 55 and still going through it. At least most of my friends are also going through it so we can support each other. You must feel so alone.
I do not have any medical training so I can only tell you what worked for me. Perhaps it might help you too.
I struggled and tried everything, but still balooned out 6 sizes, had vicious hot flushes, mood swings, pains all over, itchy skin - I ticked off most of the symptoms. No medication or replacement hormones worked. I kept looking and finally stumbled on raw food. Within 2 weeks all my symptoms were significantly diminished and I started dropping weight really quickly. It took me 4 months to get back to my pre-menopause self. Two years after starting I began incorporating some cooked food, but I must be very careful. If I eat too much of it I start getting hot flushes again and get depressed, so I am still obviously going through menopause just symptom - less. I eat mainly raw fruit and vegetables, especially green leafy ones (look up green smoothies), a little bit of fish, no dairy and very little grains. At the moment I am about 80% raw. I don't know if it will work for you, but surely it is worth a try?
Just google raw menopause, I am sure you can find a lot of info about it. Good luck with it, I sure hope that you will find something that works for you.
Thanks for your Reply!
I'm sorry you're going through this! I had a hysterectomy with ovary removal when I was nearing natural menopause and it hit me like a brick wall! The physical symptoms (insomnia, hot flashes, nausea, weakness) were bad enough but the mental and emotional were even worse. I quickly became suicidally depressed, anxious, couldn't concentrate or remember anything, the list goes on.
I don't know what meds you're taking but I sure hope you're taking HRT. But you need to realize that it's a "crapshoot." You may have to try different ones and different dosages until you find one that works the best. What your doctor thinks is "best" may not work well with your body. And being so young, you may well need a higher dose than the maximum dose available in most formulations.
I was on an inadequate form and dose of estrogen for far too long and suffered needlessly. Once I found a better one for me, the depression gradually lifted, no anti-depressant needed. Other symptoms improved too. I can't say I'm the person I was prior to the needless removal of my organs, but I'm much better than I was that first year post-hysterectomy. There are hysterectomy support forums out there that may be helpful to you. Good luck!
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