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At wits end with migraines....
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daisy8246 posted:
Hey everyone I am 29 years old and have had migraines now for the past 3 and half years. They have steadily gotten worse. I have lost 3 jobs due to being off work cause they were so bad at times and couldnt get any relief. I've been hospitalized once for them. I've been on all types of preventative drugs and I just cant seem to find anything that really works for me...or if it works my body gets immune and it stops working! I've done the nerve blocks and now my neuro is suggesting Botox! Has anyone had this done before?

I work at a computer all day and that seems to bother my migraines alot. I've had a bad migraine now for the past week and feel sick all the time. Just not sure what the step should be...

Thanks for your help....
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Lainey_WebMD_Staff responded:
Hi Daisy8246 and welcome to WebMD!

That's an interesting question and I look forward to hearing what others have to say.

Here is a discussion that you might be interested in: How do I explain Hemipeligic Migraines to Officials?

I hope it helps,

Lainey
 
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NeNe_11 responded:
Hi Daisy & welcome to the post...It sounds like you are really struggling with the migraines. I understand completely, as I have had them for about 15 years-they started around when I was about your age. I too have tried so many different drugs & your right, it does seem as if our bodies become immune to them & then we have to try something else.

I havent tried Botox-it scares me-but maybe I need better educated on the risks/benefits of it. I know its getting alot of media play however. If you go that route, please check back & let us know how it goes for you.

Having a job where you are continually at the computer is killer for us migraineurs-make sure you take lots of breaks just to stretch your neck & back & give your eyes a break.

Good Luck-I hope you get some relief,
Denise
 
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DUKE MEDICINE
Timothy Collins, MD replied to NeNe_11's response:
Botox seems to work for chronic daily migraine, which is defined as more than 14 headache days per month.

I've used botox for migraine patients since around 2003, and have not seem very many side effect.

The new dose (for FDA approved indication of chronic daily headache) is 155 units of botox injected 5 units at a time into a total of 31 places in the head (it hurts a little).

I have had a few patients with a short 2-3 day increase in headache pain after the injections.

2 patients recently had dramatically increased headaches for 2 months after the injection, this really looked more like a side effect of the botox rather than just from the injections.

I've also had a couple of patients feel like their head was "heavy" or their neck was mildly weak after injection of the higher dose of botox.

(so the number of patients having side effects in my clinic is something like 3-4 out of 100-150 patients, which is a pretty low risk for side effect---)
 
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carpetcrawler5 responded:
I have heard Botox usually works for people who get migraines from neck issues. So it should work for you.
 
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itsabadheadday responded:
I can relate I have had migraines for over 25 years. I have had BOTOX for migraines, the injections themselves are slight with the ones going in on the side of the head with the most discomfort.

Of course everyone is different but I have experienced a decrease in the amount of migraines I have. I didn't notice any noticeable difference at first, but after a few months I am noticing an improvement, which for me is downright wonderful. I am using it in combination with other strategies and I am cautiously optimistic, after this long I don't get excited over any treatment for migraine.

Don't be surprised if the BOTOX alone doesn't resolve all of your issues. I hope you find some relief soon.
 
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paceckafecker responded:
I have had botox and it did not help..thats not to say it wont help you. I have a friend who gets the shots and they do help her. I have been suffering for 9 yrs now and have yet to find a medicine that helps me for a long period of time. whether its prolonged use of meds and my body becomes immune , I just dont know. I come from a long family history of migranie and cluster headaches, so I know I was just next in line to inherit the problem. I do see a neurologist and am on a waiting list for one of the top specialist in the NE. However the waiting list is 16 to 18 months * sigh! I suffer with one sided pain from the top of my head down into my eye all the way down my neck and into my shoulder. It has been suggested I go to pain management for injections into my neck to help that pain! I currently take percocet or furocet along with a muscle relaxer and prednisone. They have all become short term cures for me...I always get reaccuring headaches. You are not alone in the fight to find relief. I too would love to get a job but find it impossible to be someone who ould be reliable everyday. Please kee me posted on your progress and i wish you well.
 
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yukonok responded:
BOTOX YES!!! I'm 55 and suffered from migraine since age 8, and suffered from 20-25 migraines each month for the last 8-9 years, and none of the classes of preventives worked for me or side effects too severe to stay on them to find out. I had my first round of botox 2 1/2 months ago (neuro tried 100 units rather than the recommended 155 units for the 1st round due to cost) and I received 19 injections rather than 31 (neuro said it's his adaptation for fewer sticks for the patient w/same benefit). After one month, there was no improvement, so he started me on nadalol (beta blocker which I'd tried before with no luck) starting w/10 mg the 1st week, then 20 mg daily. Slowly I had improvement with fewer migraine days (15 per month instead of 20/25. Then, I added 10 mg. muscle relaxer before bedtime, because I too frequently awokd in the middle of the night with migraines. Now...I've had 9 days in a row without migraine! I haven't had that many days in a row HA free in a decade. So...botox in combo w/other drugs (which never worked alone before) are working! I got Blue/C/S to pay 2/3 of the cost although it took repeated reports from the neuro and calls from me to make them help. I go for 2nd round of botox at 155 units at end of this month. I was terrified of it, but the only side effect from 1st round, was ear ache for a few hours on right side, and fluttering spasm deep in the eardrum on the left side off/on a few times. Hope this helps!


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