Includes Expert Content
Migraines, cysts questions
avatar
JMC_z3 posted:
I've posted in here about a year ago, I think it was about 4 years ago now that I've had a CT scan of my brain during a ER visit for extreme pain. (they wanted to rule out a stroke) After the scan, the Dr said I had a Pineal cyst, I dont understand anything about cysts in the brain but I've had migraines on and off for years. This past summer seemed like I've had more.
Last week I've had lab tests that showed high TSH so now I have to take Thyroid medicine. My questions are, is having Ovarian cysts, ganglion cysts and a pineal cyst all related somehow? I have ringing in the ears constantly--its worse at night because I try to sleep.
It seems that since I've found out I had this pineal cyst, I've developed more disorders througout my body. Now I recently had a ultrasound of my thryoid to see whats going on with that.
I dont know if I should be posting in this community or the one I usually go to--Fibromyalgia because I was diagnosed with that in 2008. I also have vision problems, I found out earlier this year I now have cataracts and I'm only in my 40's, somtimes my eye pressure is up & have dry eye issues. I'm thinking about seeing a Neurologist to find out if the pineal cyst has grown and am seriously thinking of some sort of implant to decrease all the pain I'm in constantly.
Reply
 
avatar
carpetcrawler5 responded:
I also have thyroid problems, and recently I have also had ringing/buzzing in my ears, although it's not bad enough to hear it only when there's no other sounds. Try to protect your hearing whenever you can and wear ear plugs if there's too much noise.

It sounds to me like the cyst is what's causing your pain. Don't know whether it's a type of disorder if you get cysts, might want to google it. hormones to help the Ovarian cyst can give you headaches, if they have estrogen.

Fibromyalgia can cause headaches. Look up all the meds you're taking and see if they have headache as a side effect also.

Is there any way to remove or reduce the cyst?
 
avatar
JMC_z3 replied to carpetcrawler5's response:
I forgot to mention, I had my ovaries removed due to one rupturing and the fluid was infecting my stomach cavity, had high fever, extreme stomach pain etc. I Have no ovaries, no uterus--each was taken out separatly in 1993 and 1999.

I'm just trying to figure out why my body is going downhill, seems like within the last 4 years. First I had the on and off migraines for years, in the 90's I was taking something similar to Imitrex for an year but went off that, side effects werent good. In 2006 I started having stomach pain, tests showed Hiatal hernia--during this time I had the CT scan in the hospital and they found the Pineal cyst in my brain. Mid 2007 was IBS diagnosis later that year was Shingles on my upper shoulder--still have nerve pain there. Feb 2008 was Fibromyalgia diagnosis. 2008-2010 was Severe Vitamin D deficiency--almost had none in my body. I was b12 deficient--had to take shots for that, then earlier this year I was anemic and had to take Iron pills. Then this summer had alot of migraines, nearly everyday, joint pain, overall muscle pain, severe fatigue--was hard to get out of bed. Last week is when they found the high Thyroid issue--so I'm wondering how and why is all of these things going on??
 
avatar
DUKE MEDICINE
Timothy Collins, MD replied to JMC_z3's response:
I'd like to separate out your questions, and try to answer them one at a time:

Pineal "cyst" is actually not a "growth" but a normal variation--this is formed while your brain is developing before birth, and usually has no health effects. Thyroid cysts, ovarian cysts and ganglion cysts are completely different problems, and unrelated (except that you have them---kind of like a flat tire on a car and peeling paint are unrelated, but can both be on the same car)

High TSH is actually high thyroid stimulating hormone. This is the hormone your pituitary uses to make your thyroid gland produce thyroid hormone. if your TSH is HIGH, it means your thyroid hormone is LOW, so you have to take extra thyroid medication.


Unfortunately 40 years old is often around the age that thyroid problems appear. (along with this being the age when our eyes stop focusing right, and we have to buy reading glasses. )
 
avatar
Redneckgirl1277 replied to Timothy Collins, MD's response:
In regards to all these conditions being "unrelated", I have to wonder if it is possible even though you and my doctors say otherwise. You see, my situation is VERY similar to JMC_z3's situation and many others I've discovered doing research online. I have suffered from debilitating migraines for years before an MRI discovered a marble-sized Pineal cyst in my brain, which my doctor said was not the cause of my migraines. This led to more tests which revealed my C-2 vertebra is twisted at a 45 deg angle. They also found 2 torn discs at that time. My doctor believes this to be causing my migraines. During these tests it was revealed that I also have a quarter-sized Thyroid cyst. In the meantime, severe pain in my abdomen sent me to the ER where the doctors found a grapefruit-sized Ovarian cyst. I have spent the last 4 years in constant pain, tried physical therapy, chiropractors, occipital nerve blocks, steroid epidural injections, which have all made the symptoms worse. My other symptoms include ringing/buzzing in the ears, dizziness, night sweats, pain and numbness in my neck, right shoulder blade, arms, and hands. I turn 35 in October, I can barely function and have lost 5 different jobs due to all of these "unrelated" conditions. I have highlighted and underlined the similarities in my and JMC_z3's cases for quick reference. In my opinion, you doctors should be doing studies on patients like myself and JMC_z3 and others to figure out how these "seemingly unrelated" and very debilitating conditions just might actually be connected to each other and possibly be symptoms of something else altogether. Just one pain-riddled woman's opinion.
 
avatar
An_256570 replied to Redneckgirl1277's response:
Hi, I just came across your post from 2 years ago and my life and medical issues seem very similar. Was wondering if you had gotten any better or received any answers? I just turned 36, and am in the medical profession myself. I am extremely frustrated and getting more and more depressed from not being able to work or exercise. I used to get sick all the time with strep throat, even as an adult, so in late 2012 I had a tonsillectomy. Later that year I was severely ill for Christmas (flu like symptoms but not tested). Since then I have never been the same. Shortly after Christmas 2012, I began with severe unilateral ear pain and tinnitus. It was unbearable and I began working with a pain specialist after having been worked up by 3 ENT's, who found nothing but conductive hearing loss. After being on long acting opiates for 3 months, I began feeling RA symptoms (morning joint pain). This eventually turned into severe pain lasting all day, along with fatigue, night sweats,anxiety, and then a unilateral ptosis. In and out of hospital. All labs normal, except 2 positive Lyme tests which were labeled "false positives." I did antibiotic therapy anyway just to be sure, but my health has plummeted. I used to be a happy and healthy marathon runner and active in the gym. Most of my days now are spent in bed. Too much activity worsens everything, as well as too little activity. I have sacroiliac pain and sciatic pain when I have tried to run. I also have always had migraines, which went away with acupuncture during my pregnancy 5 years ago, and now they have returned. I just had a ruptured ovarian cyst, and I'm not sure I can really take this anymore. I would like to be a normal, healthy 36 year old, and be able to have another baby, but nothing seems too bright at this point. I can name other symptoms: irregular periods, sore breasts, insomnia. You name it. However, no actual diagnosis or physical evidence in lab work or testing. This makes it harder because I have no definitive treatment or answers. Today everything has hit the fan, so I am just reaching out. I normally do not blog or write anything online. Thanks.