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Migraines, cysts questions
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JMC_z3 posted:
I've posted in here about a year ago, I think it was about 4 years ago now that I've had a CT scan of my brain during a ER visit for extreme pain. (they wanted to rule out a stroke) After the scan, the Dr said I had a Pineal cyst, I dont understand anything about cysts in the brain but I've had migraines on and off for years. This past summer seemed like I've had more.
Last week I've had lab tests that showed high TSH so now I have to take Thyroid medicine. My questions are, is having Ovarian cysts, ganglion cysts and a pineal cyst all related somehow? I have ringing in the ears constantly--its worse at night because I try to sleep.
It seems that since I've found out I had this pineal cyst, I've developed more disorders througout my body. Now I recently had a ultrasound of my thryoid to see whats going on with that.
I dont know if I should be posting in this community or the one I usually go to--Fibromyalgia because I was diagnosed with that in 2008. I also have vision problems, I found out earlier this year I now have cataracts and I'm only in my 40's, somtimes my eye pressure is up & have dry eye issues. I'm thinking about seeing a Neurologist to find out if the pineal cyst has grown and am seriously thinking of some sort of implant to decrease all the pain I'm in constantly.
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carpetcrawler5 responded:
I also have thyroid problems, and recently I have also had ringing/buzzing in my ears, although it's not bad enough to hear it only when there's no other sounds. Try to protect your hearing whenever you can and wear ear plugs if there's too much noise.

It sounds to me like the cyst is what's causing your pain. Don't know whether it's a type of disorder if you get cysts, might want to google it. hormones to help the Ovarian cyst can give you headaches, if they have estrogen.

Fibromyalgia can cause headaches. Look up all the meds you're taking and see if they have headache as a side effect also.

Is there any way to remove or reduce the cyst?
 
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JMC_z3 replied to carpetcrawler5's response:
I forgot to mention, I had my ovaries removed due to one rupturing and the fluid was infecting my stomach cavity, had high fever, extreme stomach pain etc. I Have no ovaries, no uterus--each was taken out separatly in 1993 and 1999.

I'm just trying to figure out why my body is going downhill, seems like within the last 4 years. First I had the on and off migraines for years, in the 90's I was taking something similar to Imitrex for an year but went off that, side effects werent good. In 2006 I started having stomach pain, tests showed Hiatal hernia--during this time I had the CT scan in the hospital and they found the Pineal cyst in my brain. Mid 2007 was IBS diagnosis later that year was Shingles on my upper shoulder--still have nerve pain there. Feb 2008 was Fibromyalgia diagnosis. 2008-2010 was Severe Vitamin D deficiency--almost had none in my body. I was b12 deficient--had to take shots for that, then earlier this year I was anemic and had to take Iron pills. Then this summer had alot of migraines, nearly everyday, joint pain, overall muscle pain, severe fatigue--was hard to get out of bed. Last week is when they found the high Thyroid issue--so I'm wondering how and why is all of these things going on??
 
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DUKE MEDICINE
Timothy Collins, MD replied to JMC_z3's response:
I'd like to separate out your questions, and try to answer them one at a time:

Pineal "cyst" is actually not a "growth" but a normal variation--this is formed while your brain is developing before birth, and usually has no health effects. Thyroid cysts, ovarian cysts and ganglion cysts are completely different problems, and unrelated (except that you have them---kind of like a flat tire on a car and peeling paint are unrelated, but can both be on the same car)

High TSH is actually high thyroid stimulating hormone. This is the hormone your pituitary uses to make your thyroid gland produce thyroid hormone. if your TSH is HIGH, it means your thyroid hormone is LOW, so you have to take extra thyroid medication.


Unfortunately 40 years old is often around the age that thyroid problems appear. (along with this being the age when our eyes stop focusing right, and we have to buy reading glasses. )
 
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Redneckgirl1277 replied to Timothy Collins, MD's response:
In regards to all these conditions being "unrelated", I have to wonder if it is possible even though you and my doctors say otherwise. You see, my situation is VERY similar to JMC_z3's situation and many others I've discovered doing research online. I have suffered from debilitating migraines for years before an MRI discovered a marble-sized Pineal cyst in my brain, which my doctor said was not the cause of my migraines. This led to more tests which revealed my C-2 vertebra is twisted at a 45 deg angle. They also found 2 torn discs at that time. My doctor believes this to be causing my migraines. During these tests it was revealed that I also have a quarter-sized Thyroid cyst. In the meantime, severe pain in my abdomen sent me to the ER where the doctors found a grapefruit-sized Ovarian cyst. I have spent the last 4 years in constant pain, tried physical therapy, chiropractors, occipital nerve blocks, steroid epidural injections, which have all made the symptoms worse. My other symptoms include ringing/buzzing in the ears, dizziness, night sweats, pain and numbness in my neck, right shoulder blade, arms, and hands. I turn 35 in October, I can barely function and have lost 5 different jobs due to all of these "unrelated" conditions. I have highlighted and underlined the similarities in my and JMC_z3's cases for quick reference. In my opinion, you doctors should be doing studies on patients like myself and JMC_z3 and others to figure out how these "seemingly unrelated" and very debilitating conditions just might actually be connected to each other and possibly be symptoms of something else altogether. Just one pain-riddled woman's opinion.


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