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Exhausted by non stop Migraine for over two years..help to find cause and some releif
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She_is_shelly posted:
I've had a non stop Migraine like headache for over two years and can't seem to find any solution and minimal releif. It is baffling, because it is not like a typical migraine(which I have had in the past). I wake up with the pain it gets worse throughout the day and is debilitaing as the day goes on. I end my day going to sleep with the headache. The symtoms are vertigo,light sensitivity, severe pain above both eyes and forehead area sometimes moves into the temples area. It is relentless, and only releif of pain comes from excedrin migraine ( I get minimal releif from triptans). I am taking 1000mg a day of depakote now and symptoms of pain, light sensitivity, and vertigo are still present, but just not as severe as if I took nothing, I've tried everything..MRI to check for tumor, cranial sacral therapy, yoga for stress releif, checked for intercranial hypertension by spinal tap, stopped eating gluten, dairy and soy. Did the candida diet, Had my eyes checked, had thyroid checked, had accupuncture, was tested for etrogen dominance and other bloodwork. I am wondering if there is something else that is causing this that has not been checked for. It is a mystery to me and the pain is debilitating. I am a full time single parent and I need to be able to work and function. I welcome any ideas and input. Thank you.
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allie_bf responded:
My first thought would be to wonder if you are getting persistent rebound headaches.How much of the Excedrine Migraine are you taking, and how often? How long have you been on the Depakote? You want to give any drug a fair trial, but if it's not working after a few months, it's time to move on and try/retry something else. Have any drugs worked in the past for your migraines? Sometimes it pays to re-visit a drug that has worked before, but might have stopped working at some point because a retrial can result in renewed effectiveness. If your menstrual cycle is a factor (as it is for many, but not all, women) you could try talking to your obgyn to see if a trial of OC's might help. If you haven't ruled out sinus infections (given the site of your pain,) that might also help; sometimes ongoing sinus congestion can aggravate migraine heaches. Good luck, and let us know how things are going. .
 
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She_is_shelly replied to allie_bf's response:
My nuerologists intention of the preventative Depakote is to help me not rely on medications like imitrex and excedrin and stop any rebound headaches. I have been limiting my use of excedrin to 1 to 2 time a week and alternating with the triptans so that I don't get the rebound headaches. Ive tried depakote and topamax so far and topamax didnt provide any releif, I used that for a few months and was switched to Depakote and which I have been taking for a few months now. I try my hardest not to take medication and suffer through the day so that I can see if these are being caused by rebound or are just persistent and unresponsive to the preventatives. I have had little sinus problems, I used to in the past, but had a sinus surgery about 5 years ago that put the recurring infections to rest. I also dont eat any gluten or dairy because that can cause some sinus inflamation for me. I'm at a loss for what is going on here and am wondering if there is something more I don't know about or any other solutions. I'm exhausted by being in pain all of the time. Thank you for your response.
 
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carpetcrawler5 replied to She_is_shelly's response:
It doesn't sound to me like Depakote is working for you. It may be time for you to try something else, as there are many more options out there.

What it sounds like to me is you have transformed migraine, which is where your head hurts every day in some area, and every couple of days it turns into a migraine. This happens because the area in inflammed and is more sensitive to triggers.

I don't respond to triptans anymore and the only thing that stops my migs is Indomethicin, which I can't take very often because it causes stomach irritation if you do. Also Etadolac works but not as well. They're both prescription NSAIDs. Also I try to get at least some excercise, which helps your blood circulate.

You can also try putting ice around your head. I buy Techni-ice and cut it into strips and freeze them and wrap them with bandanas and tie them around my head and neck.
 
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itmatsb responded:
Hi,

It sounds like you have worked very hard trying to get relief. Good for you, but unfortunately you're still in a lot of pain.

I didn't see anything about you trying any prophylactic medications that you take every day to prevent getting the headaches. There are many of them to try.

Also other things that I have tried that have helped me a lot are nerve block injections and Botox injections. Also a transdermal gel and lidocaine nasal ointment that don't get into your blood stream and do cause rebound headaches.

Many people don't know what is causing their migraines, but that's no reason not to get help for your migraines. They never could definitively tell what suddenly caused my distinctly different migraines right before i had a stroke and have had 24/7 ever since, but they think my stroke caused it.

Also, maybe a sinus infection could aggravate your headaches, but are not much of the cause of such pain. That's what my first, totally inept doctor told me was the cause. My pulmonologist, my Ear, Nose & Throat specialist and 2 neurologists told me that there was NO WAY that my sinus infection could cause such pain.


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