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I just found this post not too long ago. It really felt good. I told my husband about it. And we have talked about it a number of times. I am blessed because my husband does rub my head and has cleaned up "puke buckets" (sorry guys) more than he probably cares to remember. But he gets it most of the time. It is inconvenient and I am sure there are nights where he is alone and wishes I would come out of our room and spend time with him. I also sleep in the guest room from time to time because I can't sleep and pace because it hurts. But after 13 years he loves me and headaches are part of the deal.
I get what you are saying on a lot of things. After days of being in pain my shoulders and back are in pain but it is hard to describe. It hurts to be touched. Like maybe skin on fire but not itchy or anything just hurts.
The carpel tunnel wrist thing can actually cause problems in your elbow if you wear it too much because it puts the strain more strain on muscles in your forearm and elbow. I had this problem years ago and ened up wearing this forearm brace thing with a little blow up "pillow" to press down on a muscle to help relive its stress. So that could be contributing to some problems.
My Doc has me on Topamax and Paxil for the headaches. You might want to chat with your doctor about those options. I have cried many times at my doctors office and he hands me a tissue. You have to be able to talk to your doc. They have to know what is going on with you. Even if you cry.
I would like to say that I would recommend you printing out a few of these posts about people and their chronic headaches and how they feel and what it does to everyday life. So he can see that you are not the only one with this problem. Print out the part about my husband.
And talk to him. You married him because he is your best friend. He can be one of your biggest allies in this. But unless he has ever been through it he cannot understand. Educate him. Maybe even give him this website to visit. Give him a snack and shut the door. A lot of us have been in a similar place. It is depressing and overwhelming at times. I am third generation and my niece at 7 just had her first MRI a few months back. So it is a genetic/familial thing for us. I have been ruled by them. It is frustrating. I have cried in pain. I have laid in the dark in pain. I have paced in pain. And it seems sometimes there is no end. But there can be help and the right doctor can help.
My Dad is in Stage 4 metastatic colon cancer. Undergoing chemo to buy him a bit more time but they said he won't make it until the end of the year. He had the headaches. He has always understood me. And in a few months I will not have him anymore. Life seems cruel sometimes. I feel angry sometimes.
I feel cheated sometimes because I am saddled with these headaches. My sister is plagued with them. Buy I guess it is my cross to bear in life and I try to do it the best that I can. I have found the best allies I could to help me with my burden. And hopefully you will too. You have to be proactive with your own care. Have your husband be a partner to you in this. (Just my thought)
My profound sympathy to you in your loss of your father.
Let me know if you need anything. I keep watch here because I feel comfort here. Even if it is cyber.
,It sounds a lot like you may have fibromyalgia. You have a lot of the symptoms. And you definitly need to get a dr who listens to you. That's important for people with chronic pain. We all(chronic pain sufferers) probably have had drs we had to change because the old one wasn't doing the job.Whenever they keep saying "no,no" that usually means they're not trying to help or don't know enough about headaches.
Fibromyalgia can definitly give you headaches.Also you may be able to get corticosteroid nerve blocks for your neck pain,and at least the headaches that are caused by your neck pressing on blood supply and muscles to the brain could be relieved. Get a pillow that supports your neck at night,and you may cut back some of that problem. Have you ever seen a pain spec? They have lots of options,including TENS units which I use when mine get bad. but you can probably get the nerve blocks from your regular GP. I actually did that.
Also you might be suffering from clusters besides the migraines,because you said you get pain in your eye. Very few people who get migraines also get cluster headaches,but they're out there.One thing that helps for that is oxygen therapy.Sometimes Imitrex helps also.
What all preventatives have you tried? there's a lot of them,but you said you've tried everything so that's probably a dumb question.You never know tho,if your dr is as uncooperative as you say he may not have prescribed you everything to try.
Although I'm thinking you might have the fibromyalgia,numbness is common with migs. But I think it only lasts as long as the headache does,so if you've had it for that long it may not be from migraines.
Do you have any allergies? I have bad pollen allergies and they usually come at about this time of year,my mom says from trees. Different people have different allergic reactions to things,mine right now is extremely itchy eyes and it's driving me crazy. You could be having the throat and pruritis from pollen,or foods. I was putting allergy-eye drops in my eyes but it didn't help a lot so I took an allergy pill and it helped for a few hours. Maybe you can go to an allergist,you would be surprised at the things you might be allergic to. I found out I have a bad allergy to dust mites. They might be in your pillows or bedding. Not trying to scare you,but I would get an allergy test just to see.
I wouldn't ever tell someone they are a hypochondriac,what people don't understand is some people are just more sensitive to their environment. My dad has every problem in the book, because he's sensitive to everything.
About your period. there's stuff you can take that can help and some things that might hurt. Estrogen is a very bad thing for headaches because it causes imflammation. However,in some cases it helps level out hormones. But if you're estrogen sensitive you might have to stay away from it. Progesterone on the other hand can help. But there are some BCPs that women take that eliminate their periods and have a low estrogen content,and you skip the pink ones to stop your period or shorten it.
If the dr you have is trying to throw anti-depressants at you,he should at least know which ones can cut back on headaches, and the two you mentioned aren't usually prescribed for that. The blatant problem is you're depressed obviously because you're dealing with chronic pain,and there's a lot of people out there with the same problem. Although depression itself can cause headaches,I don't think that's the case with you. I was exremely depressed for years because of my headaches.
Any headache dr would do bloodwork,by the way.
I'm really sorry about your dad. My dad's had his share of medical crisis,and takes about 10 different pills a day! He's 76 now and I don't know how he made it this far. He can barely get up and walk anymore.
One thing you can try is excercise. Swim or walk in cool weather,both shouldn't cause headaches.

my tip is just massage your neck muscle and then breath in and out. do some neck workout and take 2 EXCEDRIN Migraine pills.and do it again and sleep. .
Works for me, and good luck to you!
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