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Migraines for approx 30yrs. Need help
An_251238 posted:
I have had the same neurologist for approx. 30yrs and he says that I have complex migraines and cannot use normal migraine meds. I have been on Depakote, steroids, and now Topamax. He has even given me numbing shots in the back of my head. A few of the migraines have been so bad that I had to go to the ER. DR says he doesn't know why, and there is nothing else he can do. I have kept the food diary and know some of my triggers, but now that I have had 8 TIA's and a stroke, I am at the end of my rope. I have seen a specialist and he told me to come back if I have another TIA. Saw him in Oct, he retired in Dec. I was at the ER again 2 weeks ago and the ER doc told me that my migraines are why my face is "melting" and I can't speak properly, or move my arm. My left eye won't open & I have a heavy facial droop during the times it looks like a stroke. It looks like stroke symptoms...confusion, slurred speech, combative, headache, unable to keep balance. Never had this in the first part of my headaches. I cannot walk in a straight line, tilt my head back, even with eyes open-I will fall over, I lose my balance very easy, fall A LOT. I take 10/325 vicodin, gabapentin, and diazepam, to control the headaches. Some of them last 7-10 days. I have made an appt with a new neurologist, but I am not sure what to ask him. Please, if anyone has ANY ideas about this, please help. I can't even work because my job & my Dr feels that I will have another TIA or stroke in front of my students! This is NOT helping the situation!
meaningfulc1952 responded:
Hi to An251238,

I have had tension and migraine headaches since I was a teenager. I am 60 yrs. old now. I finally found a wonderful neurologist to help me. He has been prescribing fioricet w/codeine 30 mg. and Phenergan 25 mg. for nausea and sumatriptan for the migraines. He also has been giving me botox injections in my neck. My neck is so stiff and always hard to move without having a lot of pain.

I would absolutely change to another neurologist asap and try some of the other meds and treatments. Also, atenolol taken at night helps prevent migraine headaches. I just started on that new med and it is helping a lot. Since I started taking the atenolol I have many less headaches. I am really surprised too. Atenolol is for blood pressure problems I think.

Believe me, any dr. that says there is nothing else to try for migraine headaches well, they don't sound like they are up on the newest treatments that are available. If it were me, I would sure find a new dr.

Good luck,
itmatsb responded:
If you have another stroke it is best that it is in front of your students or someone who can then call 911 to get you treatment as soon as possible. What is so terrible about a student seeing someone get sick.

You don't say a thing about what precautions are being taken to prevent you from having another stroke.

Yes, the symptoms you describe are exactly what a stroke survivor experiences--facial droop, difficulty walking, losing balance, falling, etc.

Topomax is a normal daily preventative migraine medication. Have you tried any others? Why can't you take normal migraine meds? If not, then why haven't you tried Botox injections?

Get another neurologist ASAP.
Poul1986 responded:
Tramadol has been proven as a great relief for migraines, RLS and even arthritis. You can check out tramadol at good price here ..

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