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Neurologist not helping, HELP
c3marchese posted:
So I have been suffering from migraines since I was at least 5 years old. I used to just take aspirin, so much actually it would start my ears ringing. Then a doctor gave me codeine, that stopped working fairly quickly. I then had an angel of a doctor that gave me vicodin after years of suffering. I probably took a total of 4-6 500mg tabs a year. She also gave me a variety of triptans to try and abort before they got bad. This plan worked the best for most of my life when nothing else would. As an adult, I started taking excedrin migraine instead of the vicodin sometimes, because it did not upset my stomach.

I go through phases, some months it can be 2 migraines a week for three months straight, but for instance, until yesterday it had been about 2 month maybe longer since my last migraine.

Now here is the problem.

My husband and I decided we needed to get a handle on this, as I was going through a particularly bad phase around 9 month ago. I was getting at least two migraines a week sometimes more. We found out there was a migraine specialist really close to us in a nearby hospital. I had never seen one so we decided this was fantastic maybe I could actually get help and some answers and we could really get a handle on everything.

Of course (like I had expected) the VERY first thing she said was no more vicodin. I realize the culture is changing and even though I am in no way addicted so many people are they can't take any chances. She also said no more excedrin migraine, I didn't know it caused rebound headaches. But here is where it got VERY odd. She replaced these with NOTHING. I asked what should we do when I get a breakthrough headache, and she said go to the emergency room and tell them I am her patient. On the prevention side she had me start magnesium, which I think works actually quite well for prevention.

So, I go home and try this. It quickly became apparent that although the magnesium was working, I would still get breakthrough Migraines. I will admit that there were a few times I took a half a tab of vicodin because I couldn't bare the thought of getting up and going to the bright and busy ER. So I made it about 9 month like this, and the last 2-3 month were a good phase.

Yesterday: I woke up at 6am in the middle of a full blown migraine. I tried my triptan but it was obviously too late. I tried a half tab of vicodin and nothing. We called my GP she is on vacation. We called the Neurologist she was off today the nurse said to go to the ER. So we went. When we arrived they did the usual checks and then immediately started me on morphine. It did not work and they tried another med started with a 'd', can't quite remember and it brought the pain down about 30%. Then they got hold of my Neurologist. She told them to give me NO more pain medication and instead give me an IV of Magnesium. I at the time had no idea what they were doing, I thought it was pain medicine, but when I told them it wasn't working and the pain started getting bad again, they said this is what my doctor ordered. Finally after everything they gave me Toradol that we had to ask for because my Neurologist had said no more pain meds. They gave it to me and I was able to go home with a pain level of about 1-2.

Is this normal? Should I be mad? If you have taken away all pain medication from someone who suffers a painful condition isn't that wrong? I understand having to get the frequency down, but when I actually have a migraine shouldn't the main goal be pain management?

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