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    24/7 chronic migraine for almost 2 years
    avatar
    amirahlee posted:
    Hi, I'm 15 years old and I've had a constant chronic migraine for 19 months straight now. I wake up with it and go to bed with it. I've literally tried every medication you could possible think of (abortive and preventative). I've even done Botox and natural remedy stuff and that hasn't worked. I've been to about 4 different neurologist and soo many different specialist and none of them can quite figure out what's wrong with me. I've had migraines since I was 11 and I'd always be hospitalized for a week (one-two times a year) because they wouldn't go away but this time it just never went away. It's gotten to the point where I'm on a pain scale of 9-10 everyday and I had to be home schooled. I'm just hopeless and tired of being sick and hoping if anyone else had anything that helped them?
    Reply
     
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    cybermom67 responded:
    Hi amirahlee. My 13-year-old son has 24/7 headache and I'm homeschooling him. He's tried lots of meds, chiropractic treatment and various nutritional improvements, none of which helped. PT and neurofeedback seemed to be making a huge difference for a while, but stopped and we have no idea why. I'm hoping his neurologist will let him try Trokendi XR because its made a huge difference for a girl on our FB support group. We also think he's a good candidate for occipital nerve decompression. Most doctors do not recommend "migraine surgery" but the success rate is increasing and the risks are minimal.
     
    avatar
    bigpicture responded:
    I have had chronic migraines for about 14 years now (in my 30's now)- worse for the past few years. I have tried a lot of things, Botox included. I am about a month into trying a new type of chiropractic treatment though. Until recently, I didn't realize there were different types of chiropractors. I am going to an upper cervical chiro now but also looked at a neurological chiro. So far, I believe the upper cervical chiro is helping - and already starting to see some improvement. Also, I have been using Cefaly - just recently FDA approved but used in other countries for a while. Virtually no side effects and safe for children. LOVE IT! I too found myself in a similar place as you and hope that you find some relief.
     
    avatar
    jonnyp responded:
    I suffered from chronic migraines since 20008. I knocked mine from everyday to 1 every month or so. I was taking 8 rounds of meds to get rid of them. Then a friend introduced me to an all natural, organic product called Limu, the super nutrient in it has over 1100 independent studies,
    http://www.ncbi.nlm.nih.gov/pubmed/?term=fucoidan
    jonnypye.iamLimu.com


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